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[betty boop]

Hi Guys, I'm not here to post a sob story or to get sympathy .........

I just need to vent to people that I consider friends ............

My wonderful daughters seizures are getting worse rather that better, back to one a week again .......... last week I had to watch her fitting for 20 minutes .......... the doctors said not to let it go for that long, and to give here a muscle relaxant (diazepam) after 5 minutes ..........

So that is what I did this morning (for the first time since brain surgery 21months ago) I administered diazepam after 5 minutes, the seizure stopped instantly .............

I've then had to watch her drift in and out of sleep all day with slurred speech and 'drunken' legs ............ had to carry her to the toilet and up and down stairs ........ had I not given diazepam she would have been back to normal within an hour ...........

She sits her year 6 sats next week and the teachers are telling her that no matter what she can't have any time off ............. and she is worried about that ......... the more she worries the more prone to a seizure she is .....

I know that there are people out there with far worse problems but I just wanted to vent ......

Thanks for reading ...........

BB xx

[petpeeve]

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BB, my heart goes out to you and Kerrie for having to endure this. Don't feel guilty about giving her the meds to stop the seizure, it is what the dr. suggested, however, did the dr say there would be these side effects? Keep up the faith.

[bestlifeldms]

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Oh Betty! I can't think of words. My heart goes out to you and for what your sweet Kerrie is enduring. I will continue to pray for her improvement and strenth for you.

Love - Best :h

[Ollie]

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I'm so sorry you are going through this. I can't imangine anything worse than watching your child suffer. I'll keep your family in my prayers.

Ollie

[Bambi]

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Dear Betty,

I am so sorry you, your daughter and family is having to go through this. My thoughts and prayers are with you and yours...as well as sending you extra strength during this time!

Keep you faith, smile and chin up for your health as much as Kerrie's!

Hugs, Bambi

[betty boop]

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Janie it is administered orally into her gums, it is called midazolam buccal, I could pm you more details if you could shed any light .........

Petpeeve, We used to use it before her surgery, but then the seizures were worse and required an ambulance without the emergency meds, so the after effects were better than an ambulance .......... It is so long since we used it that I had forgotten about it ......

Best, thanks for your prayers ........

Thanks again all .......

:l

[betty boop]

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Ollie and Bambi, we were posting at the same time .........

Thanks for your kind thoughts .............

[Thankful]

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BB ~

That's awful that the teachers are being so uncooperative. Can't they see that this child does not need any additional stress?? Can she get a home tutor?

Lots of prayers going your way.

Love, Me
:l

[brittzak]

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Betty,
There is NOTHING worse than seeing our child in pain or suffering. NOTHING.... You were here for me the day I was begging to be carted to rehab I was so sick, I will NEVER forget that. I think you are a remarkable woman! You stay sobber and can care for your daughter as should be done. My heart breaks for you all. Stay strong sweetie! I am here if you need anything...

[nancy]

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Hi Betty

Sorry you are going through such a rough time. It sounds to me like you need to research more medical options. Are you a member of online support groups for epilepsy?

As for the school stuff, can she get home tutoring? If not and she misses the tests, well so be it. Her health is more important right now. Maybe you can get her into some sort of alternative school setting that is more flexible. I know we have options here in the U.S.

But at least for now, she is probably not going to be able to have a conventional school life and it certainly isn't worth her getting all upset about if that increases the likelihood of seizures. Maybe you can make her see that it seems all important now at her age, but that things will balance out later and there are different paths you can take to get to a particular goal.

It sounds like a very difficult period for you but maybe you are going to find a new solution and get through it ok.

Take care of yourself and your daughter!
Nancy

[petpeeve]

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Have you talked with her guidance counselor? My daughter had some social issues, along with depression and bi-polar and couldn't physically go to school without freaking out, all year they have been very supportive and she will graduate in June.......heck, we pay all these taxes they sure enough should be able to help you back!!!!!!

[Dolly Sunshine]

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Thinking of you and your family Betty. It's so hard to see our kids hurting.

[betty boop]

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Hi all, we pay for a part time home tutor for her to keep up with the lessons that she is missing, unfortunately the teacher that she has now is new to the school and unlike the others that have all found a special place in their hearts for Kerrie, she is really cold ..........

I found out from our private tutor that Kerrie is entitled to extra time on her exams but the teacher left it too late to apply for it ..........

I have never had a violent streak in my life but I could quite happily swing for this teacher ........

Thanks again guys ........ this means a lot .......

BB xx

[cowgal]

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Dear BB!

OH my, that makes my problems look miniscule. My heart TRULY goes out to you, I will have your daughter in my prayers tonight, promise.:wings::lilangel:

Love you,:l:l:h:h

Mary Anne

[bestlifeldms]

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Dear Boopster!

You want I should come over dare and take care of dis teacha for ya? :bat I can call cousins Vinny and Guitto! No problem!

Seriously, this "cold" hearted teachers' short coming of not letting you know until after a deadline has passed should be brought to the attention of her Supervisor! We all have one. If the teacher was remiss, and these special circumstances exist, then there should be an exception made. I wouldn't stop with the teacher. Go over her head! Or threaten to call the local media. That will probably get someones attention. Dang! I hate it when people are such poop heads!

Grrrrrrrrrrrrrrrrrrrrrrrrr! Mamma lions claws are showing!

:h Best