My Daughter

[Breez]

My Daughter

Prayers to you and your precious angel....

[pansy]

My Daughter

Hey Camps

Hey Camper,

As a person who has spent time with your family, I can say that you and your husband are both tremendously caring and attentive parents. You have repeatedly altered, or NOT altered your lives, according to the needs of your baby. Numerous times over the past months you have been offered lucrative positions, all of which you declined because you would not have been able to transition Sophie with her new therapist. Instead, you have been living off your savings and keeping your fingers crossed on the job front. Although you would LIKE to purchase another home, you have not done so - why? - Sophie must stay at THIS school because it is the best place for her. So, you stay in your apartment with the landlord's demon spawn running around over your head screaming at all hours of the night. It would be impossible for me to recount all the small things you do to make Sophie's path more enjoyable ... but I know you are doing them because I hear her laughing on the phone everyday (okay I hear the screams too and the odd flying dish - but that is part of the ASD - and don't I wish everyone understood).

Sorry someone felt the need to tell you that you are not a "sane mommie (sic)." That is pretty ridiculous and could only be an arrow aimed by a person with little knowledge of who you are as a person. This statement was clearly designed to hurt you, as anyone with half a brain knows that to accuse a mother, especially one with a special needs child, of being insane and unfit, is about as low as you can go. I know, because I was there on the phone to hear you cry. Let's scrape who said that off our shoes and move on with what needs to be done.

The doctor is a specialist - and unfortunately - we all know that specialists order tests like teachers give pop quizzes. He is just ruling things out. You would know if she had CF by now. She would most likely never have had the extended periods of good health that she has enjoyed previously. So, follow the advice you got today. We are all here for you and are praying for Sophie to lose her awful hack (yes, I hear that too).

Hugs and more hugs,
Pansy

[Allie]

My Daughter

Dear friend!
So sorry you and Sophie are having such a rough time, but if it makes you feel one ioda better, my little niece who is three is having an MRI tomorrow of all things on her sinuses as well as a result of constant sinus infections for months. You have echoed what their doctors have said, and they even mentioned cystic fibrosis as well! I think they have to be careful that they do not overlook that one in a gazillion "just in case". Also, at this age, their immune systems actually have to "catch" everything they are exposed to the first time in order to fight it off and become immune to it, which often means being sick a whole lot the first five years of life! I know my daughter was a walking snot machine and earache until she was five and had tubes in her ears twice, adenoids and tonsils removed and her eardrum ruptured on one side and had to be rebuilt by a specialist and we were told she might lose her hearing... sheez! She is perfectly NORMAL! The only issues we deal with now are PMS and fender benders! I think Sophie's immune system is doing what it is supposed to and the doctors are just erring on the safe side, so I know all of her resisting all the poking and prodding has probably got you all in knots if you are like me! I remember! Hang in there and this too shall pass... (one day she will be yelling at you and driving).

Love ya!
Allie

[Arial]

My Daughter

Dear HappyCamper

If I could give you a hug now I would, so sending one through cyber space :l instead! This is obviously a challenging and emotional time and I admire your amazing courage and strength. Take it one day at a time and be kind to yourself too - Don't for a second doubt yourself - from just reading your post your love and devotion to your daughter just shines through.

I worked closely with the family of an autistic boy for 2 years and I'm sure that no one who knows what that means would ever doubt your skills and qualities as a parent! His mother shared a poem with me - or actually it's more a prayer - that she said gave her strength and support. I wish I could remember it word for word but until I can contact her for a copy all I can offer is a very poor paraphrase. It is along the lines of a mother asking why she had been chosen to be the parent of a handicapped (in her case, an autistic) child and God's answer is "because of all the people on earth, there are very few I could trust with the responsibility -it takes a very special, remarkable person to shoulder it, and you are one of those very few, very special, remarkable people." And she truly was, as I'm sure you are, just such a remarkable woman and mother. I wish I could do it better justice but I'll try and find the original ...

My daughter was also recently tested for a debilitating disease (Multiple Sclerosis) so I understand a little of the fear you're going through. Luckily the tests were clear (as all fingers and toes crossed that Sophie's will be too!) but the trauma of the scans, MRIs, lumbar puncture, gut-wrenching sense of helplessness, my own imagination, and then the waiting for the results - will stay for a long time yet. I know the doctors have to explore every avenue to 'rule things out' but you do wonder some times if they truly realise the effect this can have on the patient and the family???

So biggest hugs to both you and Sophie and I really hope you'll see brighter days soon - you always know where to find us !

Take care and warmest wishes,

[Java]

My Daughter

Camper,

I am praying, for you, and for your daughter, you have every prayer I can possibly get out...

Love

Victoria

[Hundi]

My Daughter

Happy

You have my warmest and best heartfelt wishes. Kids do grow out of certain things (apart from shoes). My son has not had any issues with asthma or rashes for over 5 months. Try not to worry too much, I look back at all the worrying I did and it can be overwhelming. She is obviously bright and dearly loved (like her mother). I had similar hosptal experience with my son being held down with a nebuliser thrust at his mouth - very distressing stuff. Shows how much you care and give when it is upsetting. Hang in there, it will get better. I look forward to the day my son wipes MY bum and pays for my upkeep!

With love and respect Hundi xx

[Ripley]

My Daughter

Sincerest good wishes from one mum to another. There is no pain like the worry for your child.

Kate

[Cashregister]

My Daughter

Camper you are a wonderful mother. You are under alot of pressure. I do not know how I would cope in your position, but I'm sure all mothers would find a way somehow - well us great ones anyway.

Good luck with it all - the medical tests are so gross even for the adults - i've had that scope thing about 100 times!! It's really gross. I think I would have to restrain MY Sophie in those circumstances, in fact any child would have a problem with that procedure - many adults I know take a valium beforehand!

Lots and lots of love to you and your family.

Cashy
xxxxxxx

[happycamper68]

My Daughter

THANK YOU

All the heartfelt wishes mean everything to me. It's a scary time but your own war stories about your own kids made me feel better, as sick as that sounds! Allie I pray to have my daughter yell at me while she is driving (without the fender benders of course!).

[YoungAtHeart]

My Daughter

Hey Camper,

There's nothing that I can add that hasn't already been said, so please just know that my prayers are with you. I think that Sophie is very lucky to have a devoted mom like you.

:l Kathy

[I Like Brandy]

My Daughter

Camper;

Are you kidding me, I take that persoanlly, I've met and vented with you personally, I know the love and comittment that you have for Sophie. Anytime any of us have struggles, especially with our children the support INCREASES not DECREASES.

Like I told you in chat, I'm in Queens for a short time, if you want to try to schedule some time and meet up, I would love to....Our time in New York brought all of us even closer. Those of us that were able to be there, and don't let any situation change that..Most of us are parents, mothers, fathers even people without children, you are still special to other people and no way should anybody ever try to make you feel like less of a person.

Love and Hugs...
Brandy..Always remember, I'm a true Brooklyn Baby!!!1

[morrison]

My Daughter

This stuff gets to me

Hello Camper. Love the avatar. I'm a tough guy, and when I read stuff like this, it gets the eyes a little watery. I can't stand seeing a child in pain. I will say a prayer. Also, any jerks mouth off to you like that again, you can send them my way. :argh:

[Allie]

My Daughter

Patty... Morrison looks pretty mean... maybe you could send the mis-informed PMer to him??

And Camper.. the latest wasnt a fender bender... as you might have heard with my child, they are "car totalers". I just didnt want to upset you anymore! I threw that in there because she totaled her car again yesterday, although she walked away unharmed. See? Sinus infections really arent so bad when put in perspective! Just call me if you want to feel better!! :H

You're a great Mom, and all this holding her down now while the probes are going down her is really just preparation for you to hold her down when the boys come around. Its just a big plot. The doctors just arent telling you that, but believe me. Be glad you are bigger than her now... lol!

Now go kiss your baby and get some sleep.
Allie

[ScoobyDoo]

My Daughter

Happy

I know what you are going through. I have been there. My son was dx Autism Spectrum, at the age of 2.5 He didn't start talking with more than 3 words until he was 4.5

He is main stream schooling (with a LOT of therapy still) and he no longer has the label. He is doing really well. He is at the bottom of his class but I don't care about that. The fact that he is coping with mainstream school is incredible... I'm sure you can imagine that feeling.

I will be thinking of you and your sweet little girl and hoping for a negative result. That sort of thing is every parents worst nightmare.

And as for the gutless arse-wipe who sent you the PM... let me know who s/he is and I'll give them hell when they're at their lowest point and in their hour of need. Whoever it is does not belong on a forum like this.

You poor thing Happy! *hug*

Doo

[Tahlula]

My Daughter

Happy, from one Mum to another, my heart goes out to you. You are all in my thoughts & prayers.

Good luck xx