My daughter may NOT be fine

[happycamper68]

Ok so doc calls me last night at 10PM and tells me her cf numbers are "borderline" so she has to have blood genetic testing, even though the girl on the phone on Friday told me her numbers were in "normal levels". Can you believe this unbelieveable bs. It never ends. :upset:

[AAthlete]

My daughter may NOT be fine

Happy, boy that is disheartening - they certainly pulled the rug right out from under you...

My thoughts are with you are your family - hope that this turns out to be the doctor just being precautious.

[sammys]

My daughter may NOT be fine

What in the world are those Drs. doing, besides the news being more testing are they trying to keep your family up all nite.

That is not professional what was the point of disturbing you so late!!

XXX
Sammys

[MKR]

My daughter may NOT be fine

Dear Happy,

I am so sorry that is happening. My heart goes out to you and your family.

Maybe she is borderline and when she has the next set of tests they will swing to the normal range. I certainly hope that is the case.

You are in our prayers,
HUGE HEALING HUGS,
Mary

[irishlady]

My daughter may NOT be fine

Happy, just hang on in there, its not final yet till Sophie has the blood tests and you get the results of those... Its going to be a tough time for you and your family, but never forget we are your family too and we are here for you..

Thinking of you,

Love, Louise.. :huggy :h

[betty boop]

My daughter may NOT be fine

Oh Happy, having a daughter with a long term illness myself, I can empathise ..... Our children are our lives, we just want to make them better .........

Keep breathing love, my heart goes out to you .... wish that I could do more ....

Love & hugs :h :l :h

[Beaches]

My daughter may NOT be fine

Happy, I so feel for you. I hope that everything with your daughter is OK
Try to think positive, I know it's hard sometimes. I wish I could say more to help you and comfort you.

Hugs to you and your little girl.

[InnerStrength]

My daughter may NOT be fine

Oh Happy I am so sorry to hear this. I am praying for you and your beautiful daughter.
Love Jenneh

[bestlifeldms]

My daughter may NOT be fine

Oh Camper, I am so sorry you have to go through this. Your sweet baby girl. I will keep you in my prayers! :huggy

Sherry

[Rocky]

My daughter may NOT be fine

Camper...Very sorry you have to go through this worry again.

Our thoughts are with you.

[Quiescent]

My daughter may NOT be fine

We'll be here for you Happy, no matter how it turns out.

I'm keeping you and your sweetness in my prayers.

[Guest]

My daughter may NOT be fine

I really can't add anything that hasn't been said. try to keep a positive attitude. Do whatever it takes to keep both your and Sophie's feelings up. Loads of positive energy directed your way.
Lov
Mary

[lucky 2.0]

My daughter may NOT be fine

:h I cannot imagine the angst you must be in and I am so sorry. Do not borrow trouble though. I am holding good thoughts for you and miss sophie (and mr.camper too):h

[pansy]

My daughter may NOT be fine

Hey Camps,

I have just read and gone off to do some googling. The sweat test can have problems, like if they did not collect enough sweat or if the gauze dried out, or if the guaze even got bumped. Also, some conditions may cause a borderline result. Since some forms of CF are (seemingly often) related to pancreatic problems and some of the research on autism also suggests a relationship with insulin issues ... maybe austism is one of those conditions that could throw a test off - she does have GI issues. I bet your doc has not considered this. It seems possible to me, but I couldn't find research. (Hey, did Booze Free Fox go away?) Most parents seem to speak of needing to do the sweat test multiple times and even then, it doesn't seem conclusive. It is just cheaper to do then the blood tests.

I am keeping good thoughts for you, Tim, and of course, Sophie. I do agree with Duck though - don't borrow trouble - although that sounds downright impossible right now. I did read the posts of quite a few parents who had gotten the DNA test done after a borderline result - and the DNA result was negative. It is very possible - and maybe likely - that this will be your result. After all, your specialist doc said he did not think it was CF ... just ruling it out and you already know his bedside manner sucks bigtime.

Hugs, and I will call -
Pansy

[Rags]

My daughter may NOT be fine

Dear Camper,
Just this second read your post, and my thoughts too are with you.
Unfortunately medicine is not an exact science.
This must be a very hard time for you, and there is little I can say other than hang in there and let your inner strength get you through this.