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Dr said 'No to Topa!!

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    #1

    Dr said 'No to Topa!!

    Hi
    Well I'm well jealous of Imatree, because I've just got back from the Dr and she wasn't having a bar of it!! ( pardon the pun) . Yes, Kali, the topamax is used for migraine prevention but only in forward thinking countries like the USA it seems...my Doc hadn't even heard of it! to give her ,her due though....she did telephone a Neurologist whilst I was there who said it can be used for migraines and epileptics( Duh!) but it has very serious side effects and patients need to be closely monitored for liver and kidney function. So I came away with a ' there, there, dear' , be strong sermon.
    Anyone out there gone into liver or kidney failure???!!! metallic tastes aren't what i call serious side effects.
    Don't know why we bother with Dr's, we figure this stuff out better between ourselves, don't ya reckon.
    Jane x :upset:
    Jane :heart:
    Tags: None
    #2
    Dr said 'No to Topa!!

    Hey Jane,
    Sorry to hear about the topa, I'm also not on topa, and no supps, but have been given quite the cocktail of meds equivalent to a very potent horse tranquilizer (stopped that after the second dose, realizing there was NO WAY I could function on any basis). Finally, this morning I saw a doc who gave me Lorrazepam (ativan).. 0.5mg morn/lunch and 1mg bed, that was given for withdrawal symptoms. Only taken one dose but gotta say my whoppin headaches have really numbed. As this is day one on the meds (day 4 AF) I'm hoping within a couple of days they will be gone altogether, will let you know. Good luck with the search, just thought I'd pass that along....take care & hope you find an answer for those nasty headaches
    4ever

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      #3
      Dr said 'No to Topa!!

      Jane, I have done very well with just the supplements. I can't take topa because it lowers my heart rate and was effecting my monthly cycle. It is possible to do it with the supplements. l-Glutamine has helped me more than anything. Best of luck!
      Smiles
      Mar

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        #4
        Dr said 'No to Topa!!

        Jane, maybe you could try to get your doctor to prescribe Campral or Naltrexone-- both have few side effects and help alot with the willpower-- also I think the supps and good nutrition are VERY important. They make you feel better and curb cravings. And I agree totally that we know more about this stuff than most doctors.

        4everkid: Please start on supps (listen to simeybear)-- it doesn't have to be the ones from MWO, just start taking as many as you can-- multivitamins, B-complex, milk thistle, magnesium, etc. they help ALOT (make you feel better and curb cravings) and after drinking heavily for a long time your body desperately needs them. . I'm glad you got the ativan as I know from experience it eases the withdrawal symptoms and it also protects you from seizures. Despite scary stories, it is not addictive even in large doses (which you are not taking-- many doctors recommend 2mg 3xday in the first 2 days of AF, titrating down from there to 0 over 4-5 days) so long as the large doses are not for a long period of time. Most doctors say it takes at least 4 weeks to become dependent on these drugs, and you will be done in a few days. So don't worry about it. And good luck. But I do recommend medication (topo or campral or naltrexone) to help keep you on the right path, at least for a while. It helps a lot with willpower problems and you can stop taking them any time you feel you don't need them anymore. Good luck all!
        Your time is limited, so don't waste it living someone else's life... And most important, have the courage to follow your heart and intuition. They somehow already know what you truly want to become. Everything else is secondary.

        Steve Jobs, Stanford Commencement Adress, 2005

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          #5
          Dr said 'No to Topa!!

          I thought the side effects looked scary myself!

          I must admit, i don't think an average doctor should be prescribing this and would be afraid. I would see a specialist. psychiatrist maybe or addiction specialist?

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            #6
            Dr said 'No to Topa!!

            Jane - I was so miffed after my doc said no to topa I went online and ordered it. I'm now on day 6, taking 50 mgs, and am quite pleased iwth it. A little bit of tingling, makes me tired for a bit in the afternoons, but it has already made a big difference in my desire to drink. I was taking the supps before the topa and it wasn't enough for me.
            Hugs,
            imatree

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              #7
              Dr said 'No to Topa!!

              Jane, you might want to try a psychiatrist, sometimes they are better informed on these things.
              What St. Frances of Assisi said of himself is true for me.
              ?If God can work through me He can work through anybody.?

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                #8
                Dr said 'No to Topa!!

                Jane I also went online and ordered it and bypassed my doctor all together I have ordered from two different companies. River Pharmacy and Aclepsa.com - Online Health Superstore and have gotten a better price and quicker service from the latter.

                Good luck
                "Keep your eyes and heart focused on the end goal at all times, and never settle for less."

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                  #9
                  Dr said 'No to Topa!!

                  I agree w/what beatle said. I am taking Naltrexone and I love that it has no side effects for me, worked right away, and is covered by my insurance (since it is one of the standard drugs used to help w/alcohol abuse - not off-label). Personally, I'm not sure why everyone jumps to Topamax first. I would go for Naltrexone or Campral first because the side effects are much less and they are easier/cheaper to get from your regular doc. I don't see anything wrong w/using Topa, though, if the others don't work. I guess I would just use it as a last resort since it seems to be the worst w/side effects and harder to get.

                  Oh, and I am taking the supplements and think they are helping a lot. The L-glut is particularly useful I think. Yesterday, I had a craving and took an extra 1000 mg in the afternoon and it helped a lot.

                  Comment

                    #10
                    Dr said 'No to Topa!!

                    Hey Jane, How are you today?
                    Just woke up after first day with ativan, feel a bit groggy, but definately a sound sleep. No headaches, just fuzzy. Will let you know more after I actually experience a work day :O
                    Beatle, thanks for the suggestions. I agree completely abou the supps, just waiting for their arrival. For now, Vit b,c,e as well as spirulina and a greens drink. It should take another 10 business days to arrive (2 weeks) so I may consider heading down and getting a new multi. But I do agree with what you say, the first days are crucial for long time drinkers.
                    ...oh yes, really be aware of what the psychiatrist prescribes if you go...my first gave me a very heavy mix of lithium, diazepam, effexor, and some other tranquilizer, and told me 'hey, no problems...basically it is this or hospitalization'. Now I realize why, when I went to see him, it was my breakdown, breakthrough day, I was a MESS! I think he thought I was suicidal....which I wasn't, just really scared of what I was doing to myself and nervous...together, that makes me cry, a lot. Just be aware of the drugs they give you, thats the lesson I learnt ...and don't let them bully you into thinking that just because they are 'specialists' they know exactly what is going on with you after one visit.
                    Hope you can find that topa you are looking for, if not good luck on your search for alternatives ....as well as conquering those nasty headaches

                    Comment

                      #11
                      Dr said 'No to Topa!!

                      I think we tend to jump to the topa because it can be used for many reasons, and you can tell anyone you are taking it without giving away why, and it can be in your medical record without anyone knowing it is for alcohol other than your doctor, with the other meds---which are specifically prescribed only for alcohol dependence--you are kid of pegged when you take them.
                      It's not that some people have willpower and some don't. It's that some people are ready to change and others are not.
                      James Gordon, M.D.

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                        #12
                        Dr said 'No to Topa!!

                        Now I'm confused. I thought people used topa because you can still drink on topa, it helps you moderate and the others are for not drinking at all.

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                          #13
                          Dr said 'No to Topa!!

                          Hi guys
                          Thank you all soooo much for the support and lending me your ear. i needed to vent!
                          Today, I feel resolved and reasonably strong. My headaches are so much better since I started taking the allergy medicine ( periactin = piriton ). I had stopped all the supps wondering if they were causing the headaches, but they probably weren't. I shall start on the L-glut and Kudzu again I think, and see how I go.
                          If no improvements, I'm gonna order the Topa on-line. I was trying to do the right thing by going to the Dr, but blow 'em. I'll deal with it myself.
                          Week 4 now AF and starting to crave a drink....will it ever end?
                          Jane
                          Jane :heart:

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                            #14
                            Dr said 'No to Topa!!

                            adagirl:

                            The reason alot of people here jump on the "topa bandwagon" is because MWO is based on RJ's program of supps, hypnotherapy, Topa & exercise. Other people here just tweak the program to suit their needs.
                            :flower: Change a life; make someone feel important. ................. ........................ ..................... ........................ ................. ....... sigpic

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                              #15
                              Dr said 'No to Topa!!

                              Topa online is a good option to go along with the sups.
                              Buy Generic Topamax (Topiramate) Online :: Aclepsa.com - Online Health Superstore
                              It must be so frustrating managing to tell your doctor how things are and then having them say no.
                              Suz
                              Happy to be sober since 07 Sept 09.

                              Comment

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