Announcement

Collapse
No announcement yet.

Baclofen - Spread the Word - You have nothing to lose but your stigma.

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Baclofen - Spread the Word - You have nothing to lose but your stigma.

    I am proposing a call to arms to bring Baclofen treatment to the attention of doctors, their professional bodies, insurers and legislators.

    Ameisen's treatment model has been hailed by Nobel laureate for Medicine Jean Dausset: "Ameisen has discovered the cure for addiction". His book has received the official endorsement of the Oxford Journal of Alcohol and Alcoholism, which represents the United Kingdom's National Council on Alcoholism, and by its chief-editor, Dr. Jonathan Chick who has taken the unusual step to support Ameisen's findings in the media. Jerome B. Posner, Chair of Neuro-oncology, George Cotzias director of the laboratory, Memorial Sloan-Kettering Cancer Center wrote in January 2009:
    "One wonders if high-dose baclofen will apparently become the treatment of choice without ever undergoing a controlled trial, simply because more and more alcoholics will be treated and the effectiveness will spread by word of mouth. If it works as well as you indicate that it does, it shouldn't need controlled trials. Even if a controlled trial were to show no overall benefit, it is clear that at least some (maybe all?) patient's do respond."

    Now is the time, if you care about yourself, your family, your friends and the rest of us unfortunates whose lives are a living hell because the medical profession know little about the treatment of alcoholism, and could not care less, to do something.

    In law there used to be a doctrine called "local practice" whereby a doctor who knew nothing about a new treatment could defend his ignorance by saying he acted in accordance with local practice. Well, the days of disseminating information by pony express have gone. There is no excuse for any doctor to ignore the internet and the ever-increasing evidence, supported by some of the most prominent physicians, that baclofen is likely to be an extremely effective treatment for alcohol addition even if it may not be called a "cure" for a few years yet.

    Every doctor should fear that in the not too distant future he could face law suits from patients who have not been given the opportunity of being prescribed with Baclofen. Every lawyer who has a client who has an addiction may have a law suit against the client's doctor and the insurers of medical professionals could face an Tsunami of litigation if they do not take this seriously. It is time that they took notice.

    Tell your friends about this medication. Tell your doctor. Send an email to the professional body for doctors in your area asking why doctors are not prescribing Baclofen for alcoholism. Tell them it works and let them know that an increasing number of people afflicted by this horrific illness are healing themselves with little or no help from the medical profession. Give them something to worry about.

    If the only way Baclofen can become a widely used treatment for alcoholism is through word of mouth then start spreading the word. I have written to the General Medical Council in London, England, the American Medical Association and told two local doctors about Baclofen. I am telling everyone I know about Baclofen.

    Hundreds of millions of people around the world are affected by this illness. Stop being a victim of this illness and a medical profession which has little knowledge of this effective treatment for alcoholism and cares even less. Help lift the stigma that blights the lives of alcoholics and their families which labels alcoholism as a moral attitude rather than the illness it is.

    It only takes a few emails. It costs nothing and it could change the lives of millions.
    BACLOFENISTA

    baclofenuk.com

    http://www.theendofmyaddiction.org





    Olivier Ameisen

    In addiction, suppression of symptoms should suppress the disease altogether since addiction is, as he observed, a "symptom-driven disease". Of all "anticraving medications used in animals, only one - baclofen - has the unique property of suppressing the motivation to consume cocaine, heroin, alcohol, nicotine and d-amphetamine"

    #2
    Baclofen - Spread the Word - You have nothing to lose but your stigma.

    I hear your voice, and it's an important one. I haven't yet been "cured" by baclofen, though I hope to be on my way. When and if I am, I will be sure to heed your call.

    Comment


      #3
      Baclofen - Spread the Word - You have nothing to lose but your stigma.

      Super interesting. In the US I would think as soon as it becomes used for AL there may be a stigma with it for some and until the medical profession can change the way they treat ALs then people willl continue to hide and not ask. As long as the state, docs etc do not clamp down to deny it on line people still can benefit-without taking onthe added stigmas and guotl that frankly may have lead many of us here on our computers instead of to a doc, rehab or even AA-- though those things can work for many and do. I am just afriad with the various lobbies that until folks in the US find a way to make money on it they will not prescribe it widely-- I have asked my doc-- he is not into it even after reading the articles and I would consider him all around a good doc and in many cases an off label risk taker. Thankfully if it can be ordered on line then it will be something folks can use f they are hurting. I have never gotten an on line prescription and have had to go to docs with some non-AL serious health things for things so I am used to docs -- but i would and am considering making it a part of my plan-- you all have convinced me to be open minded-- heck claritan used to be prescription here a few years back and now it is OTC -- same with zantac- they help millions live better lives-- where was the line of demarcation-- I knew folks who woudl go to Canada and buy claritam to not have allergies!. Why should it be okay for them to treat these medical conditions and others not to treat one that is far more devastating to people and families??

      Comment


        #4
        Baclofen - Spread the Word - You have nothing to lose but your stigma.

        I forwarded this post to a doctor who put together a network of doctors who will prescribe in nearly all states after an in person physical.

        I am awaiting his reply on if he will prescribe baclofen and inform his network of doctors to do the same. Were talking hundreds of doctors in nearly all 50 states. Thanks for the post. I cutnpatsted it to bolster my argument

        Comment


          #5
          Baclofen - Spread the Word - You have nothing to lose but your stigma.

          I honestly cant think of why it wouldnt work in terms of a national network of doctors already in place.
          The initial model was about 200$ in person physical with necessary prescriptions, cash as insurance eats up costs and drives docs nuts.
          So then a monthly 30$ a month ongoing costs to monitor blood and make sure people arent slipping on a bananapeel.
          Its bound to be cheaper and safer than going overseas

          Give me until wednesday for his response and Ill let you know.

          Besides, I doubt he'll say no but if he does, the model is sound, we can do this fairly easily with grassroots help such as yourslef

          Comment


            #6
            Baclofen - Spread the Word - You have nothing to lose but your stigma.

            Bill.P.;829198 wrote: I forwarded this post to a doctor who put together a network of doctors who will prescribe in nearly all states after an in person physical.

            I am awaiting his reply on if he will prescribe baclofen and inform his network of doctors to do the same. Were talking hundreds of doctors in nearly all 50 states. Thanks for the post. I cutnpatsted it to bolster my argument
            Thanks for your response and support. You made my day.
            BACLOFENISTA

            baclofenuk.com

            http://www.theendofmyaddiction.org





            Olivier Ameisen

            In addiction, suppression of symptoms should suppress the disease altogether since addiction is, as he observed, a "symptom-driven disease". Of all "anticraving medications used in animals, only one - baclofen - has the unique property of suppressing the motivation to consume cocaine, heroin, alcohol, nicotine and d-amphetamine"

            Comment


              #7
              Baclofen - Spread the Word - You have nothing to lose but your stigma.

              I am so hoping we can find doctors in the states who will do the Ameisen treatment model. Last year my husband and I tried to get a baclofen prescription from our family dr. for him. He said "no". This year he finally agreed to give him one month's supply of 10 mg. IF he made an appointment to go back to his psychiatrist. He seems to want that dr. to do the prescribing. He did make the appt. and the psychiatrist gave him a prescription for baclofen; but told him he probably wouldn't go higher than 30 mg. a day for him. The psychiatrist had heard that baclofen has had "amazing" results; but why can't he get with the program? I've ordered from a pharmacy overseas and maybe we can do it ourselves it the psychiatrist won't go higher. We've even loaned the Ameisen book to the doctors. Our best proof
              will be to be successful in this treatment and go back to prove to them it can work. I know he will try his best. I also know it would be so much more helpful if you all could have the assistance you need from doctors.

              Comment


                #8
                Baclofen - Spread the Word - You have nothing to lose but your stigma.

                where is the media in all this? if this is truly a "cure" then certainly the media would be all over it. i think we need some filmakers on the forum to jump on this.

                Comment


                  #9
                  Baclofen - Spread the Word - You have nothing to lose but your stigma.

                  gratitude;845762 wrote: where is the media in all this? if this is truly a "cure" then certainly the media would be all over it. i think we need some filmakers on the forum to jump on this.
                  Hi everyone - I am helping my brother start on Baclofen - we are in Canada - Toronto. We got a Dr. in Chicago to provide the script and had the script sent to a pharmacy in Blaine Washington, then my dad and sis drove from Vancouver to pick it up and fedex it to Toronto. All of that because we haven't got a doctor here to prescribe it.

                  One thing you should know is that even people who are long time members of this MWO community don't know about it. I was on the live chat last night looking for advise and was surprised that virtually none of the folks who were on the chat at the time had knowledge of it. I gave people links to the threads here and the Dr. A's website and many of them were quite interested.

                  So I think one element of the spread the word plan has to be to inform everyone here - people who have had success with Baclofen need to tell people here about it. I am not the right messenger since I am not using it, but I sure would if I was addicted. Please go to the chat lines and spread the word there - the more people using it the more it will spread out from this community.

                  Comment


                    #10
                    Baclofen - Spread the Word - You have nothing to lose but your stigma.

                    Amen Susanna!!

                    I am soooo excited about my meeting with my counselor (she is a APRN - so she can prescribe medicine) on May 3rd (I haven't seen her since Feb when I was still titrating up on Bac). She couldn't prescribe more than 80mg but I told her what I was doing by ordering baclofen online and gave her a book and she was real excited about it. She is going to be thrilled when I tell her my success and she is the type that will spread the word. I am going to give her a personal letter of my journey and success that she can share as she sees fit and she already has a copy of the book that I gave her.

                    I am also going to get more copies of the book and send them to a bunch of doctors I have run into during this mess and include a personal letter. I think I will also include a copy of your post if you don't mind and perhaps Dr Ameisen's posts on here as well.

                    I believe in this cure so strongly and I want to see alcoholism wiped away. I have a few friends that are going to get some books and some phone calls from me as well.

                    I am so excited about the future of this medication. Thanks for urging people to get moving on spreading the word. It won't be long before your brother experiences the awesome freedom that Baclofen can bring.

                    Also, thanks for pointing out that there are many on this forum that are not aware of baclofen. That is surprising to me and I will help to spread the word.

                    Kelly

                    Comment


                      #11
                      Baclofen - Spread the Word - You have nothing to lose but your stigma.

                      birdy02;846118 wrote: Amen Susanna!!

                      I am soooo excited about my meeting with my counselor (she is a APRN - so she can prescribe medicine) on May 3rd (I haven't seen her since Feb when I was still titrating up on Bac). She couldn't prescribe more than 80mg but I told her what I was doing by ordering baclofen online and gave her a book and she was real excited about it. She is going to be thrilled when I tell her my success and she is the type that will spread the word. I am going to give her a personal letter of my journey and success that she can share as she sees fit and she already has a copy of the book that I gave her.

                      I am also going to get more copies of the book and send them to a bunch of doctors I have run into during this mess and include a personal letter. I think I will also include a copy of your post if you don't mind and perhaps Dr Ameisen's posts on here as well.

                      I believe in this cure so strongly and I want to see alcoholism wiped away. I have a few friends that are going to get some books and some phone calls from me as well.

                      I am so excited about the future of this medication. Thanks for urging people to get moving on spreading the word. It won't be long before your brother experiences the awesome freedom that Baclofen can bring.

                      Also, thanks for pointing out that there are many on this forum that are not aware of baclofen. That is surprising to me and I will help to spread the word.

                      Kelly
                      Yeah Kelly! I am excited too - between the exhaustion of keeping Paul safe till he hits the trigger.

                      Comment


                        #12
                        Baclofen - Spread the Word - You have nothing to lose but your stigma.

                        Encouraging words from Dr. A

                        Great post otter, and very well articulated.

                        I just want to remind you all (or inform those of you who haven't read Dr. A's posts here) that Dr. A, after years of fighting for the cause of baclofen, crashing against the fortresses of the big drug companies, the medical establishment (of which he is a part), and entrenched societal convictions about alcoholism, and after suffering monumental setbacks, he is pretty upbeat now...

                        In his first post on MWO, he wrote:

                        "You should in no way worry about the future of baclofen for alcoholism. Its present is already quite extraordinary. Progress has been spectacular and hundreds of patients have already gotten “disease-free” (I am quoting the figures of academic physicians) and the number of saved patients is growing exponentially. The treatment I discovered – high-dose baclofen – has already received wide recognition both in the US and internationally.

                        In France, the most respected newspaper, “Le Monde” and the ones with the widest circulation, “Metro”, “20 minutes” to name only a few recently have recently devoted there front page to openly accuse alcohol and addiction experts of unscientific and unethical behavior for having refused for five straight years to perform their duty, that is to conduct randomized trials of high-dose baclofen. These are the gold standards of evidence-based medicine. The media has even accused these French addiction experts to refuse to conduct trials and to refuse prescribing baclofen out of fear of losing their patients. In France, alcohol and addiction specialists are the only physicians to refuse to prescribe baclofen. In Germany, a few days ago, the most respected daily, “Die Welt” devoted the entirety of its “Wissenchaft” (Science) section to my treatment and claims that refusal of addiction experts to conduct randomized is simply leading general practitioners to compassionately prescribing baclofen to save lives and alleviate the sufferring of victims of alcohol dependence. Many physicians now say that randomized trials will come in due time only to confirm what everyone already knows: that baclofen simply renders alcoholics “disease-free”, and in a matter of only days or sometimes weeks."
                        Your time is limited, so don't waste it living someone else's life... And most important, have the courage to follow your heart and intuition. They somehow already know what you truly want to become. Everything else is secondary.

                        Steve Jobs, Stanford Commencement Adress, 2005

                        Comment


                          #13
                          Baclofen - Spread the Word - You have nothing to lose but your stigma.

                          p.s., I'm not sure about that last claim ("in a matter of only days or sometimes weeks")... I can only think of one person on this forum who was cured so quickly. But still...
                          Your time is limited, so don't waste it living someone else's life... And most important, have the courage to follow your heart and intuition. They somehow already know what you truly want to become. Everything else is secondary.

                          Steve Jobs, Stanford Commencement Adress, 2005

                          Comment


                            #14
                            Baclofen - Spread the Word - You have nothing to lose but your stigma.

                            I think its only a matter of time before someone gets behind this and we see some proper trails done to silence the masses. Hopefully sooner rather that later.
                            Started TSM 07/12 Pre TSM... 50-100 UK units

                            Drinking under control. Still shooting for abstinence.

                            Comment


                              #15
                              Baclofen - Spread the Word - You have nothing to lose but your stigma.

                              Baclofen and GPs

                              We are in the UK

                              My wife went to a psychiatrist who specialises in the study of Alcoholism - and who knows a great deal about Dr A's work. He prescribed the Baclofen initially, but our GP - to whom the psychiatrist has written - has agreed to prescribe himself once the dosage has reached a steady level. My wife has currently reached 70mg/day

                              That is great - but we shall of course hit the usual problem at 100mg when the GP (and psychiatrist) are unable to prescribe a higher dose. We shall have to find our own way around that.

                              I think the message is - seek someone who knows about Baclofen and who is in a respected position - and see if he or she will contact your GP.

                              Comment

                              Working...
                              X