I am a lurker, and barely post, but I want to let you know that baclofen REALLY works!
First of all, many thanks to all of you in this forum; your posts, mean and have meant a lot for me!!! It?s been loads of help through this process!
I started this fight against AL back in 2007 with Campral, then in 2008 with MWO program but couldn?t handle the Topamax SE?s (extremely pain in my stomach, severe depression, etc.). BUT I found this forum through MWO book and that was wonderfull! Through this forum (in 2009) I found information about Naltrexone and TSM (The Sinclair Method) that I followed for 9 months all of them with NO success.
In my desperation, I came back ?once again- to this forum to look for information and I read here about Baclofen. Immediately, I bought Dr Ameisen?s book and started his method on March 2010 and since then, I?ve kept reading all your post about BAC and the SE?s.
Regarding BAC SE?s?I had ALL of them?like many of you on high dosis, nodding when I shouldn?t (office, middle of a coversation!, red lights, etc) and of course insomnia, twitching, tangling, etc, etc, etc and the WORST, I gained +25lbs in the process?HORRIBLE!!!... But ALL totally worth it because now, after years of fighting this terrible illnes, I?m finally FREE of this demon!
Why 400mg? because I gained +25 lbs and saddly because I was drinking while taking BAC. I deeply think that I would hit the switch at a lower dose of baclofen if I couldn?t stop drinking?but I couldn?t.
I was totally afraid to level off at a lower dose but I read somewhere here that it was safe to titrate up to 5mg/kg. Well, I said by myself that if I don?t reach my goal of quiting @ 400mg I?ll drop it. Thank God, @ 400mg the miracle ocurred for me.
At 400mg suddleny I just felt the indifernce that Dr A?s explained in his book (he got this feeling @ 270mg, though) Anyway, suddenly, I was not interested in AL anymore?I was (and I AM!!!) craving extremely cold WATER with a lot of ice!!!...that?s my drink now instead of my rum with coke (diet!!) that was my drink of choice. Thank God now it?s ?ice water?!!
I now can see my husband and friends drink rum and coke and I am TOTALLY indiferent!!! I prefer WATER?..that for me, is something AMAZING!!!
Oh, by the way, I never suffered for depression or anxiety or nothing in my entire life, my only problem was the alcohol.
OK, that is my story, but now I have a problem?.I am completing 2 weeks at 400mg (Dr A?s said in his book that he stayed at 270mg ? his ?switch? level- for 12 day but I?ll stay 2 weeks) and I have NO idea how to start titrating down. In the book Dr A?s said ?I progressively reduce my baclofen dose?? but he?s not clear in how he did it, and unfortunately I can?t find a post here that can help me with this issue.
So I am asking for the people that already reached the switch to explain how slow they titrated down. Now, I am aware tham I am probably the only one in this forum that hit the switch at this high of a dose, but tomorrow Friday Aug. 20th I will finish my 2 weeks at 400mg and I have NO idea if I have to start tirating down by 10mg or 20mg per day or evey 2-3 days. HELP PLEASE!! Besides I can?t wait to start titrating down so I can stop having this terrible SE?s.
Sorry for this long post but this is the first time that I?m posting something about me.
Thanks for reading my story, I look forward to hearing yours.
Best wishes to all,
Kabeck
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UPDATED 9/25/10
Hi all,
It?s been a little more than a month when I first wrote telling you that I hit the switch @ 400mg of BAC.
I just want to update how I?m doing now. I started titrating down by 20mg every 3 days, and then when I was on 300mg I decided to go to 250mg to see what happen?nothing bad. I stayed @ 250mg for 3 more days and titrating down another 50mg.
I am now @ 120mg, no cravings back, no SE?s at all!!!! And I lost tons of weight!!!
I will continue to titrating down, but slowly?my plan is to go up to 80 or 75mg approx. I will titrate down approx 20mg every 3 days.
The great news is that I have no cravings at all and on Oct 1st I?ll be 2 months AL FREE!!!!
I just want to let you know that BAC really works, and once you hit the switch and start titrating down, the cravings don?t return! This pill is a miracle, seriously!
Thanks a lot and good luck everybody!
Kabeck
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