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    New here and starting Topa and with a question

    Hi everyone - Mochalatte - welcome but PLEASE, edit your post and take your e-mail out - there are way more folk than just us here that read these posts - you can set your profile up so anyone can e-mail you if they want to - please take it out of your post - you have no idea who reads these posts! Anyway, after I have said that, yes, the cravings did return for me after I stopped the Topa, and I was on it for a lot longer than the 12 weeks - it took ages for me to get to the point where it actually worked for the cravings to go away. I think of it as a long term med to be honest....... the cognitive effects are different for everyone. until you try it, you won't know. It doesn't some folk at all - it affected me very little although some days I can't think of words - but then I am 58, so it could be age!! Apart from that I haven't noticed anything different. You need to try it to find out how it affects you personally. Good luck and keep us posted! PM me if you need any more info.

    2Run - my switch never happened after the first time as I didn't get up to that high dose that I need. My body can't take that high dose without bad side effects (depression that is too bad to live with). I am fine until I get to 250, then when I get to 300mg, the cravings ALL go away and I am great re the AL, but about 2 weeks later, along comes the depression. This time I have done it without the high dose of Topa. However, each time I did start the Topa, the SE's were different. Some times I didn't even know i was taking it, other times the tingling was really severe - it seemed to be as if I was taking a different drug at times! I must have restarted Topa at least four or five times and each time, although mild, the feelings were different. I wish I had had the non interest that a few folk have had at the low dose - that would have been awesome. I do still take it, but am not sure why really. maybe it is like a security blanket for me thinking it might still be helping me - I have no cravings at all and am not taking anything else at all now - not even the L-Glut. So it could be working for now at the lower dose. It isn't broken and I am not fixing it - LOL and I shall continue to take it. The other thing is that when we are taking something like Topa - we tend to think that EVERYTHING that we feel or that happens to our bodies is related to that drug - sometimes we just feel the way we feel because we do - it might not be related to the Topa at all. That is just my thought on the subject.......

    Just got home from work and am going to go and have a read - love and hugs to all,

    love, sun X
    How simple it is to see that we can only be happy now and there will never be a time when it is not now....

    Comment


      New here and starting Topa and with a question

      Topa turned Campral

      Hi All~

      I joined here last year and have been experimenting (off and on, I'm afraid, and probably more off) with various methods for going AL free or moderating. I tried the Topa but before I got beyond 50 my hair started falling out; and I mean, falling out! I have fine hair to begin with and losing handfuls of it freaked me out. Stopped that and started on Campral which seemed to be working much better but when I re-ordered I got another version of it (this one from India). I feel like it's not working and I don't know if that's because I'm getting used to it or because it's a different - knock off? - version of the drug. I know drugs are called different things in different countries and the version I have now of Campral is considered one of the "legit" versions (online search) but I wonder. Has anyone else experienced different levels of potency (of whatever drug) from different sources? I hate drug-swapping since I'm not sure what this stuff is actually doing to me but I'd really like to find something that works. Any and all insights very welcome! :thanks:

      Comment


        New here and starting Topa and with a question

        Hi 8 - welcome. Sorry about your hair falling out - I didn't know that was a SE of Topa until someone on here said that they also had that problem - it never happened to me luckily. I can't give any advice on Campral as I have never taken it and also have never tried different drugs from different places. if you read my post two back (the one before Mochalatte's post), you will see how I eventually did quit AL. I was determined this time. I had fooled around enough and this time I know I will never drink again. It was easy - but I had planned and knew I was going to do it. I don't know how much the Topa had to do with it because Topa has never worked for me on cravings until I am up to a really high dose so I have to believe it was all down to my mindset, the L-glut, the Kudzu and the other supps that I took. Mainly my mindset - I WAS going to do it this time. And I have. I have no cravings at all. I sometimes wonder if I could maybe have just one then immediately think what stupid thinking. I know I can't. I don't know if any of this helps you - maybe someone else can answer your Campral question for you and I am sorry for waffling on - I do tend to do that sometimes - LOL

        Keep posting though - we can be here for support for you,

        Hugs, sun
        How simple it is to see that we can only be happy now and there will never be a time when it is not now....

        Comment


          New here and starting Topa and with a question

          Hi Sun~

          Thanks for the positive feedback and congrats on the AL free! You're a role model for us all. Question: will you have to stay on the Topa forever do you know or can you kick it once you've been off the al for a period of time? I've never been able to figure that out from what I've read. I know you've been on and off the Topa but it seems like you were still drinking then and now that you're not: bye bye Topa?

          Comment


            New here and starting Topa and with a question

            Hi 8 - I don't know - I think that again, is an individual thing. I quit for 8 months and was on the Topa - when I came off it, I started drinking again, but this time I really don't think the Topa is doing much as I am on too low of a dose for it to do much for me. SO, I will probably eventually wean myself off of it - although I sort of like being on it as it keeps my appetite in check! I might go down to 50mg and see if my appetite stays checked! With my new doc., I am not sure he would let me stay on it indefinitely anyway, especially if he knows I am not drinking. So again - I don't know - last time I came off it and started drinking. This time I don't think it is the topa doing anything. I think I have stopped on my own.
            How simple it is to see that we can only be happy now and there will never be a time when it is not now....

            Comment


              New here and starting Topa and with a question

              Hi- waiting for my supplements, CDs and Topa to come in the mail. I have a question and it may have been answered somewhere and I missed it so sorry if that is true.
              My question is (I have read the book MyWAYOUT) it suggests stopping topamax after 12 weeks - tapering off I should say. How successful is it once you stop the topa completely? And supplements except All in One powder after 6 weeks. Does anyone have experience with that?
              I realize everyone is different- just wanted some input if possible
              I am so excited to start program just want it all to last- my goal being to drink moderately.
              Thanks

              Comment


                New here and starting Topa and with a question

                I would like to know how Campral has worked for people. I liked topa except for brain loss, but it is also seizure med and I am also on seizure med. and can't take both. When you said l-glut with water, was it a tablet or something you mixed with water?

                Comment


                  New here and starting Topa and with a question

                  Hi Meggie - L-Glut is a powder that I got at a body building place - it is an amino acid that body builders take but is also good for handling cravings. You can get tabs too but the powder (in my opinion !) is better as the body assimilates it faster. I mix the 2 tsps in about an inch of water - it is tasteless. Or you can put the powder under your tongue for it to be even faster but it made me choke. The powder enables you to have a larger dose too - with the tabs you have to take more to get the amount you need. Hope this helps......

                  sun
                  How simple it is to see that we can only be happy now and there will never be a time when it is not now....

                  Comment


                    New here and starting Topa and with a question

                    Hi -
                    Good to hear from everyone! It's late for me but just wanted to say hi and that I'm here. So much to say and comment on...Sun, glad you are feeling better!

                    2Run - always good to read your posts!

                    Everyone else - more comments later.

                    I'm going to start Topa again, I think, along with L-glut in powder form, and try to get my life in control again.

                    Midnight - whatever you're alludiung to, I understand! This is such a struggle -

                    Hang in there, all - and lets's try not to beat ourselves up!! UGH - so hard not to!! I do it on a daily basis. But hey - watch TLC's "My Strange Addiction"...you won't feel so bad afterall!!! LOL

                    Comment


                      New here and starting Topa and with a question

                      Hi All

                      %&^^^%%%
                      Just wrote a huge post but it logged me out before I could post it all.

                      OK, trying to recall and summarise then. Just been to doc - was feeling great as blood pressure normal for 3 weeks (and no al for 3 weeks) but my cholesterol is high and liver enzymes elevated. Told at risk of stroke, heart attack, cirrhosis. Deflated. First thought outside? Want to get a drink as what's the point. Decided to drive to bottle store, but (fortunately) I burst into tears so headed home instead!!

                      Have settled down now, but still a bit caught off guard with that (especially as I have not craved nor obsessed about alcohol for 3 weeks). Have to get more tests and more meds. I guess it's early days to expect miracles, at least I'm going in the right direction. Will get back onto the Lglut and milk thistle to see if that helps.

                      OK, now my negative vibes are floating round the interwebs, I am returning to normal! :-)
                      Will catch up shortly with healthy liver and low cholesterol.
                      Oh, BTW, I have been staying down at 25-50mg/day and it is working well for me. The 75mg/day seemed to be too much!

                      Comment


                        New here and starting Topa and with a question

                        Hi there everyone - Blondie - so sorry to hear of your test results - but SO pleased that you burst into tears and didn't go into the liquor store! you knew really that it wouldn't help didn't you? Yes, milk thistle is supposed to be really good for the liver so start that - or continue taking it if you were on it before. what did your doc say? Does he/she know that you drink? Drank? What will they do next? Please keep us posted about it - what a bummer for you. But great that your BP is down!! The liver is great at regenerating itself so with continuing the no AL that should really help..... When do you have to go back?

                        Hi Houtx - yes, I am feeling back to normal again - I hate when i feel out of sorts - stupid thing to say really - does anyone like it?? LOL Have you started the Topa again yet? have you tried the L-Glut? The only thing I found is that you must be super religious about taking it. Especially when it comes close to when you would usually be drinking.... and you can always take an extra dose if things get really bad.....

                        How is everyone else doing? I am still just fine - hubs did start drinking again but said he is going to stop - he was on 10 days vacation and said that now he is back at work, he is stopping again - I really don't think he realized how hard it is to STAY stopped. he said it is easy to quit and he does find it easy for a few days...... BUT!

                        Meggie, 8, how are you doing? Play - now you have started the Topa agin, how are you feeling? 2Run - how about you? How are the feelings going? how about the AL? If you have time, post and let us know.... Mochalatte - did you decide to try the Topa? Come back and let us know.... SO much support here.....

                        Everyone - have an awesome day - I am doing a Clopen tonight so don't work until 2.00 today and got up at 5.30 - heaven only knows why!! I might try and catch a nap this morning sometime!!

                        Hugs to all, Sun X
                        How simple it is to see that we can only be happy now and there will never be a time when it is not now....

                        Comment


                          New here and starting Topa and with a question

                          Good Evening All - Blondie, good for you not giving in to your discouragement, your physical symptoms are bound to improve the longer you are off alcohol. I will try to catch up with everyone else soon as I have a few minutes to read back thru the posts.

                          As for me I have started back on the Topa 25mg since I returned home, since March 1st, no SE at all, like I never stopped or started it again, today I started 25mg in the AM as well for the next week. The last 3 nights I have drunk a bottle of wine each night, I thought I would never do that again, just goes to show how little my good intentions held up as soon as I was off the TOPA, now I wonder if it will kick in again, so far over a week and nothing, well, I will keep my fingers crossed, maybe I will have to go up much higher this time around. I have also been eating non-stop again, especially at night and have gained a few pounds again, oh my. So, it's not been a good week here and I'm feeling pretty discouraged and in a place that I thought I would never be again so I guess time will tell, I hope I don't have to go back to that tortured existence that I lived in for so many years.

                          Hugs and Best Wishes To Everyone,
                          Play

                          Comment


                            New here and starting Topa and with a question

                            Good Morning Play - sorry to hear you are back where you were - it is amazing how the Topa works isn't it? How soon did it start to have an effect on you last time? I know it is was really quickly 'cos I was green with envy! Hopefully it will kick in for you this week. I might up mine again - I was craving - no, not craving, but thinking about AL last night when I was at work - and have downed my Topa dosage drastically thinking it wasn't doing anything - now I am wondering if it was without me knowing it. So I am going to up it again. Did a Clopen last night and today, so not a lot of sleep...... need to go and get ready for work. Be positive Play - it is very early days - time for it yet to start working for you.....:l

                            Hi to everyone else - how are you all doing??

                            Hugs, sun X
                            How simple it is to see that we can only be happy now and there will never be a time when it is not now....

                            Comment


                              New here and starting Topa and with a question

                              sunshinedaisies....What is the Carr book? I'm trying to read as much as I can. Right now I'm reading "Kick the Drink" that was recommended to me. I think it's going to be alot about changing our mindset. Thanks for your comments.

                              Comment


                                New here and starting Topa and with a question

                                Hi Everyone-
                                I am feeling the way you are, Play. This is the morning of day three on 75mg and so far, none of the good SE. Still drinking with no effect there, have gained a few pounds with no effect on my appetite, and I had a migraine this week. As far as the AL, I felt the effects earlier last time and I certainly wasn't gaining weight 2.5 weeks in. I do have all of the negative effects though! Sort of trancy and irritable and extremely tired. I also don't want my hubby anywhere near me (emotionally or physically)...I remember that from Topa before. I have the tingling in my feet and hands here and there too so why not the AL?!? I was hoping to not have to go up too high this time because of the hair loss. It's growing back in now and I really don't want it to start coming out again. Sigh.
                                Sun, do you think you'll go up? Blondie, how are you feeling? NeedingChange, I can't remember the name but the author is Alan Carr.
                                "Do not lose courage in considering your own imperfections, but instantly set about remedying them. Every day begin the task anew." -- St Francis de Sales

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