Baclofen after the Switch - to taper or not to taper

[guardian]

Baclofen after the Switch - to taper or not to taper

I know, I guess my point was that I take less early on in the day because I saturate my system around the drinking hours. I also plan on taking less in my last dose in the future.

It's all in the post Ig.

:wings:

[ignominous]

Baclofen after the Switch - to taper or not to taper

Guardian
My bad..........................maybe

[ignominous]

Baclofen after the Switch - to taper or not to taper

Tracy

As always I take your opinions with a pinch of salt

[Topsy-Turvy-Tracy]

Baclofen after the Switch - to taper or not to taper

Ig, you should try a sprinkle of sugar sometime. It might make you feel better.

[Ne/Neva Eva]

Baclofen after the Switch - to taper or not to taper

Ig, my friend, remind me not to tick you off. Lighten up a bit, will you? Before the other threads start making fun of us.
Sock doc, indeed.
I also want to add that what Dr. Levin is doing is both remarkable and not very reasonable. At some point there is going to be some sort of inquiry, wouldn't you think? My medical professional friends (the two that know) are as appalled by his prescription as the fact that I can't, to date, get one anywhere else. Which is why I don't just put his number out there. (I haven't asked him if it's okay, have a hard enough time covering what I need to communicate while trying to be considerate of his time.)
And also, Tracy, I'm skeptical, too. He's risking his career for what purpose? We all know that there is a risk/reward ratio in sticking your neck out.

Two last thoughts:
First off, where did we get the info about the change in titration?
Second, sorry tip for the resounding hijack. It's an important topic that needs to be explored.

[ignominous]

Baclofen after the Switch - to taper or not to taper

Neva

Maybe I would have doubts about professionals airing their dirty laundry on a public forum. But a thought out statement wouldn't go amiss. I also don't think that having a qualification precludes you from passing on information that can effect people's lives.

OA has complained about lack of funding for clinical trials. We are providing a potentially far more extreme trial for free if you can sort the wheat from the chaff. We are all willing participants and must surely be of interest to someone interested in the effects of high level Baclofen use.

I'm not asking them to put their living on the line, just leak some relevant information too us so we can make the decisions based on more of the facts. Facts ..... more the merrier.

I have a predilection to doubting professionals when they hide information or decide what is safe for us (non professionals) to know. I want the available information.

Please send me a link to Reggie's post, I must have missed it whilst on my crusade.

[ignominous]

Baclofen after the Switch - to taper or not to taper

Neva
We got the information from a post by Corkit who got it from Dr Levin

[ignominous]

Baclofen after the Switch - to taper or not to taper

Who did just put his number out there

[ignominous]

Baclofen after the Switch - to taper or not to taper

Tracy:truce:
I also think OA's probably fallen off the wagon.
If so own up to it, we've got bigger fish to fry

[Topsy-Turvy-Tracy]

Baclofen after the Switch - to taper or not to taper

I've put his number out there too. I believe the original poster was "invited" to do that.

It's not just Corkit though. Another poster here told me in PM that he'd asked Levin outright about the change in protocol and was brushed off. He planned on asking again, and my bet is that he was brushed off again. That's why I think it was Ameisen who suffered a relapse. Otherwise, why wouldn't they feel free to simply say, ". . . because titrating down is not working for our patients." No reason that I can think of.

I know what you mean, Neva. I'm happy that Levin is available for people, but it also bothers me that he'd put himself out there like that. Given the lack of resources, we'll have to take what we can get, I guess.

Neva, have you tried something like a community clinic? I don't know where you are, but maybe a nurse practitioner (if they can prescribe where you live) would be more open-minded than a doc?

[ignominous]

Baclofen after the Switch - to taper or not to taper

Seethepony has some friends in the FBI (never knew if it was a joke or not). Maybe they can tell us what happened to OA?

[ignominous]

Baclofen after the Switch - to taper or not to taper

It wasn't Corkit who I got the original info from it was Publius on
https://www.mywayout.org/community/f2...ors-45299.html

[Ne/Neva Eva]

Baclofen after the Switch - to taper or not to taper

[Just re-read this thread. There seems to be a lot of conjecture and hear-say in here. That's worrisome. I'm in for the discussion, but we have really way-laid tip's very important thread about titration after the switch.]

First. Ig, Corkit put it out there. when? Eons ago, unless I'm mistaken. After she asked him if she could. I sort of feel like anyone getting on here and debating whether or not to use this approach should do a little homework before they call the good doctor. Which you did. Which I did. This is not a 'take a pill, get better,' approach. We're altering our brain chemistry in ways that scientists who study this don't fully understand. If you're a newbie, and you're thinking about it, and your brain (and mind) are alcoholic like mine, you should read as much as you can in these threads before deciding on a course of action. Wouldn't you agree? And if that's the case then someone could come across his number. And if not, but if encouraged/scared by some of the info, then someone could ask for his number and relevant info. Which I, and others, are more than happy to offer up.
I don't think Levin's the

[Publius]

Baclofen after the Switch - to taper or not to taper

I feel compelled to chime in here. I have thought long and hard about this new idea of staying at your switch dose, as well as discussed it with a very prestigious addiction expert who works for one of the ivy leagues (I will not say which) who is now prescribing me my baclofen. One of my first ideas was that OA did indeed relapse, leaving a horrible feeling in the pit of my stomach. I have since rethought that, and while it is still possible that that is the case, I am more inclined to field the reasoning from a different angle, one supported and suggested to me by the doctor I am currently seeing regarding the bac, a theory he claims is derived from some clinical testing they have performed (no it is not published to my knowledge) in house at the school.

The idea of a slow titration schedule, and by slow I mean increasing 20 mg every 7 days, after starting off at 10mg the first week, is not simply a tactic that is used for reduction of SE's, but also because it gives your body time to become satiated with the amount of baclofen in your system. It is not dissimilar to the idea of waiting 20 minutes after your first meal to decide if you want seconds. It takes time for your body to realize that it is full. Yes your body would eventually become full if you just kept eating, but you would end up with the same effect if you allowed your body time to realize it was already satisfied. The theory as it relates to baclofen, is that if you blindly titrate up as fast as possible, you will eventually reach satiety, what people refer to as the threshold dose, or the switch, but had you allowed your body time to adjust to increased doses slowly, you would have reached that same feeling on a far lower dose. It is for this reason people titrate back down to what they think of as a maintenance dose, but had they allowed their bodies to adjust, they would have in fact found their maintenance dose to be their switch dose. It is for this reason that the new way of titrating actually enables you to reach your switch at say, 150, as opposed to 250, and you would use 150 as your maintenance and switch dose.
I hope this sheds some clarity as to the reasoning of the staying at your switch dose. I don't believe that the people putting this theory forth intend for those who titrated quickly and went to 300 for their "switch" to stay at that dose, but that people who are starting should use this new method as the most efficient and effectual way for the bac to perform its magic.
As an obvious disclaimer, I am not a medical professional, and while this theory has been reinforced by those in the medical field familiar with this treatment, it is merely conjecture and of my own formulation for the purposes here on this site.

as a side note, neva - I have done my due diligence researching Dr. Levin, and he is a respected person in his field and is on faculty at NWU.

[ignominous]

Baclofen after the Switch - to taper or not to taper

Neva

By the very nature of this forum there is a lot of heresay and conjecture. Without a better forum, we have to work with what we've got. However distended your perceptions are, I think that eons is still rather a bad choice of words when describing a discussion that at best goes back 16 years and for most of us can be measured in months.

You oscillate between giving these Doctor's fair privilege which is their due due to their elevated position in society and embrace them in the fold as brothers in the struggle. The two positions are juxtaposed; they cannot be inside and at a distance. It is my aim to open an opportunity to rectify this tenuous stance.

As I've already mentioned to you I'm pinning my hopes on soon to be announced Asian Foundation for the Promotion of Growling Institute.

I for one, reading the book am getting the clear message that he has discovered a way to be AF, you can debate the syntax as much as you like on this one. I would have to be dragged kicking and screaming to have to read again. Talk about sifting the wheat from the chaff!

Rogue rats we are and here I give a hearty welcome to OA. And we have important stories to tell.

Publius
Apologies if needed. Your conclusions are similar to what I'm drawing about the slow titration and 'switch'. I'm still concerned about being on such a high dose indefinitely and frankly would like a professional to give me some words of comfort.

EDIT: The part about the esteemed Asian Institute is in fact a not true.