Progress thread for ne

[bleep]

Progress thread for ne

Wowsers.

Ne, if I may, it's possible you caught the wrong end of Murph's post there. When I was reading what you quoted (I haven't seen the original yet, still catching up), I found myself nodding, thinking "good post," then I got to the end and saw you were fuming.

Forums, by their nature, give focus to certain aspects, one of them is SE's in this case. And they should be a focus, because people need to be informed about them and know what to expect. The problem arises when, if we take my case for example - I had 50 posts about SE's, and one post about indifference. For me, the overriding and massively powerful part of this journey was indifference, but it's a tiny proportion of what my posts say. Anyone reading would likely think baclofen was about SE's and not indifference.

Baclofen works. That needs to be stressed more than the side effects.

As to your dilemma, and Terry's - I don't think it's so odd. I just think that's the level you need to sit at for a time. Over time, I'm hoping this level reduces. I have been thinking quite a bit about this. I think it was Dr L who mentioned that the brain rewires itself, and then someone (Chi) who followed up on that, so I'm hoping the rewiring will allow a gradual reduction. Might be horseshit though, who knows?

I kinda like knowing that it's that sensitive.

[Murphyx]

Progress thread for ne

Why would anyone think I said they shouldn't post about their side effects? MWO is far more a support forum than a treatment resource, so obviously people like to post about their SEs and responders may be able to offer tips for alleviating them or just commiserate and sympathise. Unfortunately, if you are looking for information on high dose baclofen and alcohol in an English speaking country, you're likely to end up at MWO and what you'll see is very little about the wonder of baclofen or treatment protocols but a shit load about scary side effects. And you'll see posts from people who have failed on baclofen and from people who have had some success from baclofen but need to rely on AA tools. This stuff detracts from the real message that baclofen works.

It's not anyone's fault. I'm not telling anyone to stop seeking comfort. All I'm saying is that as long as MWO is the landing point for anglophone Googlers of "baclofen and alcohol" a skewed message is being given to newbies. And it's important to keep letting people know that baclofen works and baclofen saves lives.

[Ne/Neva Eva]

Progress thread for ne

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[beatle]

Progress thread for ne

cross posted. need to reassess

[Ne/Neva Eva]

Progress thread for ne

x

[beatle]

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ok, reposted... I still think it's relevant, even though I'll probably get a bunch of hate mail because of it...

bleep;1095795 wrote:
Baclofen works. That needs to be stressed more than the side effects.
Wowsers. Why, why not both, and, really, who decides? Especailly, who decides on one person's personal progress thread what "needs to be stressed"?

bleep;1095795 wrote: I think it was Dr L who mentioned that the brain rewires itself, and then someone (Chi) who followed up on that, so I'm hoping the rewiring will allow a gradual reduction. Might be horseshit though, who knows?

What might be horseshit? Saying I think it was... and then someone followed up...?

What I think is that we need to stop making things up as we go.

Murphyx;1095835 wrote: Why would anyone think I said they shouldn't post about their side effects? MWO is far more a support forum than a treatment resource, so obviously people like to post about their SEs and responders may be able to offer tips for alleviating them or just commiserate and sympathise. Unfortunately, if you are looking for information on high dose baclofen and alcohol in an English speaking country, you're likely to end up at MWO and what you'll see is very little about the wonder of baclofen or treatment protocols but a shit load about scary side effects. And you'll see posts from people who have failed on baclofen and from people who have had some success from baclofen but need to rely on AA tools. This stuff detracts from the real message that baclofen works.

It's not anyone's fault. I'm not telling anyone to stop seeking comfort. All I'm saying is that as long as MWO is the landing point for anglophone Googlers of "baclofen and alcohol" a skewed message is being given to newbies. And it's important to keep letting people know that baclofen works and baclofen saves lives.

Anyone can go to any thread they want. This is one person's thread (a "blog" if you will), who is documenting her progress (note the word progress) through her baclofen journey. I think the person who started and continues this thread can say whatever she feels like on her self-named progress thread, and SEs have been a major part of her journey. (You might also note that the person whose thread this is is a diehard proponent of baclofen and living testimony that it works, and she encourages (strongly encourages) everyone who really wants to achieve indifference to rough it out. She says it works again and again and again.

Bottom line:
Nobody should be told not to write about SEs (or anything else) on their own thread (or anywhere else, for that matter) because the overall message (and who decided on this, btw -- is MWO now a designated baclofen propaganda board?) must be loud and clear that baclofen works (and not the SEs that accompany it because that detracts from the designated message).

Here's a suggestion: Maybe start a "Baclofen Works! Period" thread, and keep posting on that so that that thread is always at the top. For everyone, including those with severe SEs, this could be a place to put their success stories, and make sure that newcomers see that first.

In general, though, I do think we need to put a little faith in newcomers that they can read and use their brains. I've been chided for this numerous times (toning down my SEs in fears of turning off newbies), and I've come to agree that withholding information is not the way to go. Sharing information is the best way, and allowing people to do with it what they will.

Telling people what to say on their own threads is not exactly conducive to openness and sharing information.

This is a free forum. Go start your own thread and "keep letting people know that baclofen works and baclofen saves lives" (as does the person whose thread this is does, btw).

[Ne/Neva Eva]

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[beatle]

Progress thread for ne

Ne/Neva Eva;1095952 wrote: I'm glad you reposted, beatle.

It's definitely not an us vs. them short story, though. ya' know?
What does this mean? Did I say it was an us vs them short story? I must have totally miscommunicated what I meant to communicate.

All I said is that people should not be told to keep quiet about SEs because the message should be "Baclofen Works". Especially on their own threads.

Your comment here makes it look like I was putting up belligerent scenario where one side wants to extoll the virtues of bac, and the other wants to bash it. If that's how the message of my post came across, then this is a case where I really would feel deleting my post would be advisable, since that was not my message at all, and the last thing I want is to set up a "us vs. them" scenario.

All I want is an openness scenario where no us or them tells them or us what to say.

Ne/Neva Eva;1095952 wrote: Who the f* knows what is the right way...

Who the f* ever said there was a right way? I certainly didn't. The name of this forum certainly doesn't? Why are we even bringing up the "right way" now?

Ne/Neva Eva;1095952 wrote: That said, your points are well taken.

xxoo

Thanks, I just wish they were well understood.

Serves me right for posting without ruminating about it for hours first.

[beatle]

Progress thread for ne

ftr,

beatle;1095950 wrote: [I]
Bottom line:
Nobody should be told not to write about SEs (or anything else) on their own thread (or anywhere else, for that matter) because the overall message (and who decided on this, btw -- is MWO now a designated baclofen propaganda board?) must be loud and clear that baclofen works (and not the SEs that accompany it because that detracts from the designated message).

[bleep]

Progress thread for ne

beatle;1095950 wrote: ...

Wowsers. Why, why not both, and, really, who decides? Especailly, who decides on one person's personal progress thread what "needs to be stressed"?

What might be horseshit? Saying I think it was... and then someone followed up...?

What I think is that we need to stop making things up as we go.

...

This is a free forum. Go start your own thread and "keep letting people know that baclofen works and baclofen saves lives" (as does the person whose thread this is does, btw).
Beatle, I wasn't talking about specifically this thread, I was talking about MWO as a whole. Baclofen as a whole, actually

And for the last time, I also believe that SE's should be spoken about, as do most people on the forum. This idea that there is a suppression of the SE's is baffling to me.

I would love to "stop making things up as we go" unfortunately, I don't see we have much choice in the matter.

I'm also not sure I understand where your hostility is coming from, either?

Ne/Neva Eva;1095938 wrote: ...

I think I'll stay at 180mg and see how it is today and tomorrow, see if I have to resist drinking, or if it's effortless. I'm curious. And curious about what that means re. the 'switch' and indifference and the long-term efficacy (for me) of bac.

...

That's what drives me to conduct my little experiments Ne.

[Murphyx]

Progress thread for ne

Originally Posted by beatle
[i]
Bottom line:
Nobody should be told not to write about SEs (or anything else) on their own thread (or anywhere else, for that matter) because the overall message (and who decided on this, btw -- is MWO now a designated baclofen propaganda board?) must be loud and clear that baclofen works (and not the SEs that accompany it because that detracts from the designated message).

ftr I didn't post it on Ne's thread. Ne transferred it over here and so I responded here.

[bleep]

Progress thread for ne

I said that last bit Murph, and I wasn't talking about you!

[Murphyx]

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Oops! :blush:

[Doggygirl]

Progress thread for ne

I love you all, which is just funny, since I don't know you. And I spent last night and the night before wondering why the hell I was still typing away on here, just as I have for the last many months. And yet I return. It's home, after all.

:l

I'm glad to read about your "present" weekend with your family. That must have been so nice after all you have been through in the last year!

I'm sorry to hear about the return of the __________ (cravings / urges / ). This might seem odd and even be inappropriate as I'm non-bac. I've given a lot of thought lately to "what if I could drink normally again - would I want to?" For me, I've decided I would rather cut off my right hand (and probably foot too) than ever dance with that which nearly took my life. I get the feeling that you might be a bit about whether you really want to try normal drinking even though with bac, evidence appears that might be possible. (and it's very possible my comment is completely out of line since I am not a bac'er so cannot fully understand it - so I will not be offended if you tell me that!!!!)

I am really glad that you guys post honestly about your experiences. If things ever change for me and I need to consider bac, I want to know. I also soak up your experiences because I know a lot of alcoholics, and I like knowing that if I suggest someone read up about bac experiences here on this site, they will get a full dose of truth.

If people are desparate to get sober as I was and as you are, they will take the information about possible SE's and prepare themselves for that possibility.

Anyway, as always I look forward with interest to reading about how it goes staying at the 20mg lower dose. And my heart goes out to you over your dentist appointment. :upset: May it sail by quickly.

DG

[Winks]

Progress thread for ne

beatle;1095950 wrote: -- is MWO now a designated baclofen propaganda board?

Apparently. Wonder who designated it.