Bac Me

[ignominious]

Bac Me

Hi there HS

Not being a psychiatrist I've got nothing to say about your neurological conditions.

What I can say is that you are not alone in the paranoia. I stopped smoking pot and taking LSD many years ago because I was getting paranoid. Those type of feelings came back as I titrated up on bac. I consider myself lucky that I had MWO to come to and get some grounding and support plus I was talking daily, at length, with someone which gave me an opportunity to express my misgivings to sympathetic ears.

They main thing about baclofen is that all of the SEs are reversible. Reports about ODing on bac have all lead to a full and complete recovery. My own experience of unpleasant SEs has been that after reaching my switch and reducing my dose they have completely disappeared.

At one point I was talking half jokingly about making gutteral sounds to get in touch with myself. I was experiencing daily, what for the first time in my life , I recognised as panick attacks. I was making light of it but I was scared I was falling apart and that I was doing an absurd thing by subjecting myself to this. MWO and the grunting (seriously) helped me through this.

I went through pastorally calm periods and heightened anxiety periods on my titration, at the end and at my maintenance dose I don't think I am more or less mad than before! The major thing that has changed for me is that I've removed one major madness - continuing to drink - from my life.

Don't worry about Bac, it'll get what it deserves with or without you! I for one welcome hearing about the downside as well as the up.

What I've written here comes from a rather confused mind and if its no help please ignore it in its entirety! What I really want to say is that my heart goes out to you and wish you can find your way out.

[redhead77]

Bac Me

OMG HS!!!!!!!

I don't even have words to express my empathy for what you must have gone through. It happened when you went up by 20 mg? I have had some paranoia on the drug too. Nothing like what you've gone through. I wouldn't be taking it if I had.

I don't think you should worry about giving baclofen a bad rep. It is important we know what the potential is for side effects. What are you going to do? Is your husband going to let you stay on it? I would assume, he is quite concerned at this point.

[tto99]

Bac Me

Hi HS,

Sorry to hear your story.
I had similar awful experience last summer after taking some 300+ bac.
I ended up in ER with hallucinations and paranoia. It was hell.
For three days it was like living in a vivid real nightmare without an option to wake up.
I prayed to God to help me ‘thou I couldn’t believe that I could be rescued.
I was captured (that’s what I imagined) by some villains pretending to be doctors who were torturing and abusing me.
Those were the worst days of my life. Nothing could be more horrible.
Don’t want to scare anyone but I think that we should be extremely cautious when tittering up and go up real slow.

[Murphyx]

Bac Me

tto99;1102146 wrote:
Don?t want to scare anyone but I think that we should be extremely cautious when tittering up and go up real slow.

Absolutely. I assume you didn't?

What was your dose pattern? Was it all over the place like hopefulspirit's or did you just go up too fast?

[tto99]

Bac Me

I went up 2 fast.

[Cinders]

Bac Me

HS/tt09

Many thanks for posting your stoies.

I am using Baclofen and learning from your SEs.

This means I will titrate up very slowly and consistently.

This is a powerful drug and we need to be reminded of it.

Thanks to you both,
Cindi

[hopefulspirit]

Bac Me

thank you all for your thoughts...
tto09, thanks for sharing your experience and normalizing my own if that's possible. It's nice to hear that you don't have to have "transgressions" to get insanely paranoid. Are you back on bac after that?

You know you're in trouble when the psych nurse has to look up your drug OD (which is what they called it) because it was new to her.

Now my legit script was compromised because of this. Neither my PCP or my therapist will continue to support me being on bac even though it was working until I pushed the limit too hard and too fast. I've lost their faith/trust in me. Not to mention my own.

I'm not sure what to do at this point.
a. maintain the 40 mgs per day + seroquel the doctor ordered
b. Figure out how to titrate back up more consistently
c. give up on bac

-HS

[ignominious]

Bac Me

Hi HS. Good to see you back and posting. Probably braver than me to consider trying it again although that's what I would recommend.

Bummer about loosing the professional help that you have. It would help if you could find a Doctor that is knowledgeable about this but they are few and far between unfortunately.

If you decide to titrate up again then a well thought out game plan seems like a good idea. The other thing is that although there is often irrelevant stuff posted on these threads most people are very helpful. Some have quite a bit of knowledge about baclofen and will give you pointers as you go along. I've noticed that you are not an ardent poster but if you go again it would be useful to post regularly so people have an idea of where you are on the journey. No medically qualified advice available here, I'm afraid, but I think its the best that's available to most people.

With your attitude I think you will find your way out somehow.

[tto99]

Bac Me

It is a very duffucult question, HS. If bac helps you to cut down your alcohol consumption then stick to it without trying to get switch. it is still better than the other way round.
I am on bac. But I would never go up to the limits when I can't handle it.

[Murphyx]

Bac Me

tto99, I totally agree about the low dose bac; there's a lot of anecdotal evidence about low dose and reduced consumption. However, have you decided against trying to reach the switch by using a slow titration?

[Johnybegood]

Bump