Indifference.

[Bruunhilde]

Indifference.

Hey bleep, still AF?


I WANT A BEER!!!!!

[bleep]

Indifference.

I am Bruun. Still a while before I can have one, no real thoughts of it at the moment.

The diet fairy is watching Bruun...

[PbarE]

Indifference.

bleep;1082005 wrote: I was going to post this in response to a lot of people's opinion that having a doctor on board is the way to go, but luckily remembered in time! Otherwise we would have had this debate on a newbie's thread.

What makes people say this? How would having a doctor helping you through this any easier? I don't see how a doctor watching over me would have made any difference. When I had wobbles during my titration, it was here I came to, and I received more help and support than any doctor could have given. Very few doctors actually know anything at all about baclofen, let alone high dose baclofen, so what is he realistically going to tell you?

I really don't think having a doctor watching over you makes any difference at all, unless he knows the story, and you are having terrible SE's. This reluctance to go it alone has probably turned a couple of people away from baclofen, and I think unnecessarily so.

Surely you jest, bleepster.

Perhaps the best way to answer your query is to tell you a story.

1. There was a chemically dependent person in the Southwestern United States. He had all but given up hope of ever beating his addiction. He decided he was going to give it one more try. If he failed, he was going to do his loved ones a favor and eat a bullet.

2. Within hours of making the decision to give sobriety another shot, he happens across an addiction documentary. He sees a video of a series of brain scans and learns of a medication called baclofen that can quiet his brain.

3. He runs to the computer and googles baclofen. He runs across a book written by a doctor in France who claims he can cure alcoholism with baclofen. He buys the book, downloads it and stays up all night reading it. He notices that a neurologist said to never go above 300 milligrams. He also reads that the French doctor claims that baclofen can allow alcoholics to become moderate drinkers.

4. Intrigued and fused with hope, he returns to his research. He happens across this forum. He spends three days reading the mass of information here. Some claim to hit something called ?The Switch? on small amounts. Others claim to have taken massive amounts of the stuff with no effect. He is now confused.

5. Adding to the confusion, the people on this forum are talking about side effects. He goes back and skims the book again ? it does not really mention side effects. Yet these people talk of nothing else.

6. He reads the threads some more and notices that everyone has different opinion on everything. Who should he believe? Besides, these people seem to run hot and cold ? one minute they are happy and joyful, the next minute they are despondent.

7. He goes back and googles the French doctor. The doctor has not said anything of substantive value since releasing the book. There are interviews and articles, but nothing about the actual treatment since 2004.

This person is thoroughly confused. He wants to try the treatment ? it may be his last shot. So he turns to a competent medical professional, who in turn refers him to an addictionologist.

I will say this ? I was going to try baclofen with or without a doctor. But I am damn sure glad I found one.

[redhead77]

Indifference.

Wow Pbar. That was sweeeeet!! Very nicely said.

[bleep]

Indifference.

Pbar, nicely said. The horrid end to that tale in a lot of cases is the doctor looking blankly at him when he mentions baclofen though. If more doctors were open to this, then sure, but you must have noticed how many people are forced to the internet because of their doctor?

Perhaps we are too close to the infancy of this whole experience?

I am truly grateful that the person in your story found success with this method!

[coalfire]

Indifference.

Bleep. I saw you asking about the 1118G test on Brunns thread. You can get it done here.

https://www.23andme.com


Price $199 Its a saliva at home testing kit.

[bleep]

Indifference.

Thanks CF - I was mentioning it to Bruun, if I recall, as she was interested in trying naltrexone, and the test is a pretty good indicator of whether or not you will find success using that method, I believe.

[Cinders]

Indifference.

I just wanted to add a bit of something here.

My doctor added tests for kidney function to my very long list of diagnostics.

A doctor may not be able to help you with the regimen but they can ensure you are not harming yourself more than you already are with alcohol.

My doctor knows what I am doing. She does not agree with it but she knows I will do it anyway. Her attitude is to reduce the chance of harm to my body if that is what I am going to do.

Cindi

[Guest]

Indifference.

I told my GP yesterday about Baclofen. She is open to the idea but needs/wants scientific and medical evidence before she can prescribe for me. It's her professional neck on the line, and she isn't about to risk that on the grounds of an autobiography and anecdotal evidence. Going to see if one of the Drs mentioned here previously will communicate with her.

[Cinders]

Indifference.

UK,

Definitely try Dr. Levin. He is passionate about this cure.

Best of luck!!

Love,
Cindi

[bleep]

Indifference.

Good news then UK, congratulations. Just that your doctor was open to the idea is a positive step that many don't manage to get past. From what I gather about Dr Levin, I think Cindi's idea is a good one - he seems pretty open to that, and should be able to persuade your doctor.

[Lo0p]

Indifference.

Ukblonde;1086409 wrote: I told my GP yesterday about Baclofen. She is open to the idea but needs/wants scientific and medical evidence before she can prescribe for me. It's her professional neck on the line, and she isn't about to risk that on the grounds of an autobiography and anecdotal evidence. Going to see if one of the Drs mentioned here previously will communicate with her.

Dr. Levin could help. I've gathered quite a bit of information that you can print off and give to her in the consolidated info thread. It has a few scientific studies (published in highly respected medical journals) that she would absolutely be interested in. They are what prompted my own previously indignant doctor to begin treating his patients with baclofen. Other people have taken this information to their doctors before. Have you read it?

[Guest]

Indifference.

Lo0p;1086418 wrote: Dr. Levin could help. I've gathered quite a bit of information that you can print off and give to her in the consolidated info thread. It has a few scientific studies (published in highly respected medical journals) that she would absolutely be interested in. They are what prompted my own previously indignant doctor to begin treating his patients with baclofen. Other people have taken this information to their doctors before. Have you read it?

No I've not read it.

[bleep]

Indifference.

https://www.mywayout.org/community/f2...en+information

[Ne/Neva Eva]

Indifference.

https://www.mywayout.org/community/f2...ead-38718.html



My suggestion would be to print a copy of the Lancet article, it's one of the most highly respected journals in the world. It's also the one that convinced a loved one (a shrink) that this was an okay way to go.

I also printed the Addolorato research and a couple of others. I haven't used them to find/convince a doc. good luck, ukb.