Baclofen Side Effect?

[Ne/Neva Eva]

Baclofen Side Effect?

Okay, I can't really stay by the computer all day.
For the official record:

I bear no responsibility, now or ever, for whether or not someone chooses to stay on MWO.

There is nothing and no-one that could've kept me from looking for my solution. That is the only thing I have direct control over.

I guarantee you that my offer for ANY resolution would have gone unheeded.
But the fact that I feel no remorse and offer no apology is sure to bring fire.

I am responsible only for myself. That said, if there is anyone else out there whose feelings I have hurt or who feels excluded by me or anyone else, please private message or email me. It was not intentional and I will do my best to right the wrong.

[Bruunhilde]

Baclofen Side Effect?

Sorry UKB!

Ukblonde;1057658 wrote: Road to Recovery

I struggled big style with bac, I've now settled down and getting some good results from it(in fact I started settling down a while ago), but people keep making assumptions all the time. Like when I was still very sceptical but actually had already started it against my better judgement, people were still assuming I wasn't going to use it - when I'd already put my money where my mouth is.

I've posted as honestly as I can and sorted myself out eventually, but everyone is still being high and mighty with me. I've some serious stuff going on in my life, and yesterday the bloods thing was one thing too much for me when everything was just hitting me for six.

To then have folk poking fun when I'm trying so hard has almost finished me off.

The result is that I've emailed Roberta and asked her to delete my profile from here. This is not hot air, it's what I've done and how I feel.

I'm so sorry to see you leave, UKB. Everyone has their own take on what is posted here, and I don't really understand what's going on - maybe it's my own autism - but I'm sorry to see you go. Please come back and check in, PM me if you need support. :exclaimation:

[Guest]

Baclofen Side Effect?

neva eva;1057726 wrote: What, exactly, ukblonde, do you want from me?
You can have it. Period. Carte blanche from this point forward.
I'll wait by the computer for your reply.
Karen

I have been out working, earning a crust and living my life elated that I've probably hit the switch.

If you don't know then you have a lot to learn. An apology where we both accepted each other, and a change of attitude would have resolved this a long time ago. But no a few characters still go on goading, and poking fun when I've been struggling and crying out for help. I've simply been told to stop posting, go away and read. I couldn't I was flailing around.

The wheels are in motion, I discussed this with the website owner and I've decided going is the only way forward. I am not going to ask her to stop, she's been very kind in offering me other options and I don't want to waste anyone else's time. I may find the strength to come back and recount my story from sceptic to possible switch, but for now all I can see is more and more goading because I don't fit it.

I am struggling with a life threatening illness and I don't need this sort of rubbish, it's going to drive me into the ground. It's too late now I've simply had enough.

[Ne/Neva Eva]

Baclofen Side Effect?

Ukblonde;1057833 wrote: If you don't know then you have a lot to learn.
Emphatically, YES! I do have a lot to learn.

Ukblonde;1057833 wrote: An apology where we both accepted each other, and a change of attitude would have resolved this a long time ago.

Okay. Point taken. I am truly sorry if I've made this more difficult for you. Finding sobriety can be a very difficult process, no matter what path you choose to get there.
This is my third *public* apology. It is meant with sincerity and given with a much deserved dose of humility.
I am happy to support you in the endeavor.
One of the things I am *very* grateful for is the fact that I have my own thread. I can stay there, and share there, and the space feels inviolate. Also, by posting there regularly I have been able to figure out how much, when and what affect baclofen has had on my life.

I also find it *much* easier to keep up with people when they have a specific thread where they check in regularly.

The same people consistently have input on my thoughts, and I on theirs because we've gotten to know each other over the course of this journey.
Rest assured, the people whose input I value the most are the same ones that have made me eat humble-pie. In a couple of cases, they've pointed out my errors repeatedly for days on end, until I finally understood.
I count this experience as one of those. I hope that I can help rather than hinder. If you choose to follow this path in a way I can navigate I would like to be friends. If that isn't possible, we can co-exist. (THAT said, misinformation, regardless of why it's perpetuated, can't go without being addressed. It might deter people from something that may save their lives.)

Sobriety is too important to let personality get in the way. It's all just kerfuffle anyway. A distraction. I am trying to maintain focus without distraction. As you said:

Ukblonde;1057833 wrote: I am struggling with a life threatening illness and I don't need this sort of rubbish, it's going to drive me into the ground. It's too late now I've simply had enough.

Me, too sister.

I mean this this time: I am done here. It helps no-one, and nothing, to continue this. You have my apology. Let's move on, or move it off the boards.
Edit: FWIW, I've sent you my email address, again. And my phone number via pm.

[beatle]

Baclofen Side Effect?

Ukblonde;1057658 wrote:
To then have folk poking fun when I'm trying so hard has almost finished me off.

UKB, if you are referring to my post, then I am sorry you took it that way. I simply thought it was funny, but I can see that you took it personally.

Back to your problem. Somebody else mentioned LBP and I'm not sure why that was not followed up, but in the insert with the Lioresal, it lists LBP as one of the common side effects of bac, and to me, that would indicate blood pumping less strongly through your veins.

Forgive me if you have already ruled this out as a possibility, but it does seem highly plausible to me.

[Guest]

Baclofen Side Effect?

Beatle

This is exactly what I was getting at. I often feel a bit light headed on bac, slightly breathless at times too. I am pretty sure this is something to do with the baclofen. I'm not slating the stuff, just reporting it.

I've asked Roberta to reverse my request for removal (hopefully it can be stopped), and will be reporting my experiences in the general section above since I don't like the atmosphere down here at all.

[beatle]

Baclofen Side Effect?

Ukblonde;1058136 wrote:
This is exactly what I was getting at. I often feel a bit light headed on bac, slightly breathless

But these side effects are nothing new. These are listed as common side effects in the pamphlet and have been reported personally (individually) on here dozens, if not hundreds, of times. I don't understand what all the fuss has been about.

Can we just conclude that the small veins were caused by lowered blood pressure, which is a common side effect associated with the administration of baclofen?

[Guest]

Baclofen Side Effect?

Yes Beatle this is what I was trying to say right from the first post - that I felt Bac lowered my BP which is why I had problems giving blood.

This is what I was inferring all along because like you I had read that it can cause light headedness etc. I was merely reporting something I thought made a lot of logical sense, yet everyone said "OH no" and went off down other paths.

[beatle]

Baclofen Side Effect?

I understand UKB. It makes sense.

I think it's the way you said it, as in so many other posts, that made people think you are "bad-mouthing" baclofen for whatever reason, which could spread doubts, misconceptions, and fears about baclofen, which in turn could scare people away from baclofen, which in turn could cost lives. A lot of lives. I think that has been the worry of most of the people who have reacted to your threads (and posts) in a negative way. I hope you can understand this concern.

A compounding factor is that you start so many threads specifically about baclofen and specifically about your personal concerns about baclofen. This makes your concerns jump out at people more, who are then more likely to read them, and misconstrue your intentions. Using Baclofen in the title of a thread also makes it more likely to show up on an internet engine search (like google) and then people might get a warped picture about baclofen.

To solve this, I suggest you start your own thread about your own journey with baclofen. Then people can go there and read and respond to your posts, and you can post freely about your personal doubts and concerns, rather than being "in your face" about it, if you know what I mean.

You are indeed a "comrade in arms" here, and your concerns and doubts are legitimate for you, and people would like to help you, but they are also concerned about the effect your threads and statements, and often alarminng postulations, can have on a wider audience.

I really think this will work. And I'm really sorry you have had to go through this to get to this point.

[redhead77]

Baclofen Side Effect?

Hi UK,

I think it is a shame that you are leaving or not going to post here anymore. I agree with beatle in that it is how some of what you have written is portrayed. As a newbie, and as a person with a drinking problem searching these threads, I first read some of your posts and before I read more, I was immediately turned off by baclofen. I was downright SCARED! Then I read more and I decided that you were dosing wrong and that most people did not have these experiences.

When I started to read more, I kind of felt annoyed. I couldn't understand why you would take baclofen so erratically and then post about your experiences. That being said, I have found you to write some interesting and funny stuff too, that I quite enjoy reading. I think I'm not the only one who has found your posts interesting.

I think this is a group of eclectic personalities. We are posting from all over the world and have many different experiences. I think that's what makes this forum very interesting. It can also cause some friction and maybe even drama. I often read something another has written, and don't understand their lingo, or even their message because they are from a different culture. That doesn't make it wrong, I actually love to try to understand. Try to hang tight UK.


Have you ever heard of Women for Sobriety?

[redhead77]

Baclofen Side Effect?

Hi UK,

I think it is a shame that you are leaving or not going to post here anymore. I agree with Beatle in that some of your posts may be taken negatively. As a newbie, and as a person with a drinking problem searching these threads, I first read some of your posts and before I read more, I was immediately turned off by baclofen. I was downright SCARED! Then I read more and I decided that you were dosing wrong and that most people did not have these experiences.

When I started to read more, I kind of felt annoyed. I couldn't understand why you would take baclofen so erratically and then post about your experiences. That being said, I have found you to write some interesting and funny stuff too, that I quite enjoy reading. I think I'm not the only one who has found your posts interesting.

I think this is a group of eclectic personalities. We are posting from all over the world and have many different experiences. I think that's what makes this forum very interesting. It can also cause some friction and maybe even drama. I often read something another has written, and don't understand their lingo, or even their message because they are from a different culture. That doesn't make it wrong, I actually love to try to understand. Try to hang tight UK.


Have you ever heard of Women for Sobriety?

[Guest]

Baclofen Side Effect?

beatle;1058164 wrote: I understand UKB. It makes sense.

I think it's the way you said it, as in so many other posts, that made people think you are "bad-mouthing" baclofen for whatever reason, which could spread doubts, misconceptions, and fears about baclofen, which in turn could scare people away from baclofen, which in turn could cost lives. A lot of lives. I think that has been the worry of most of the people who have reacted to your threads (and posts) in a negative way. I hope you can understand this concern.

A compounding factor is that you start so many threads specifically about baclofen and specifically about your personal concerns about baclofen. This makes your concerns jump out at people more, who are then more likely to read them, and misconstrue your intentions. Using Baclofen in the title of a thread also makes it more likely to show up on an internet engine search (like google) and then people might get a warped picture about baclofen.

To solve this, I suggest you start your own thread about your own journey with baclofen. Then people can go there and read and respond to your posts, and you can post freely about your personal doubts and concerns, rather than being "in your face" about it, if you know what I mean.

You are indeed a "comrade in arms" here, and your concerns and doubts are legitimate for you, and people would like to help you, but they are also concerned about the effect your threads and statements, and often alarminng postulations, can have on a wider audience.

I really think this will work. And I'm really sorry you have had to go through this to get to this point.

Beatle by the time you had posted this I had indeed started my own thread about my Baclofen experience - as explained it's not going in this section because I feel I am constantly having the P taken out of me, or people slating me when I'm requiring support.

Yes Redhead I was all over the place I admit that and I apologise. At the time I was desperate and trying my best with a drug I was very scared/reluctant to try. As already explained I am still posting just not in this section since I'm fed up of constantly getting pulled apart. Even when I settled down and was having a better ride I was still being told to shut up. I also am very aware that there are lots of different people contributing on this forum and I have actually let this go on for a long time, and have been pushed a heck of a long way before I've had to start doing something about it.

I've found this journey extremely tough and I don't need any more hassle. As already stated I have started a thread elsewhere on this forum where I will be recounting my journey, just not here because I am to afraid I will be just ridiculed. I also found an arrogance in this section that I don't want to acquire in my recovery either.

Yet again I'm having to explain myself and I'm sick of it. I've posted earlier saying I have asked Roberta to rescind my removal and would be posting in the general section about my baclofen experience, as a compromise over this difficult situation - yet once again I'm being called to boot in this section AGAIN!!!! I just give up.

[Guest]

Baclofen Side Effect?

Ukblonde;1058136 wrote: Beatle

This is exactly what I was getting at. I often feel a bit light headed on bac, slightly breathless at times too. I am pretty sure this is something to do with the baclofen. I'm not slating the stuff, just reporting it.

I've asked Roberta to reverse my request for removal (hopefully it can be stopped), and will be reporting my experiences in the general section above since I don't like the atmosphere down here at all.

If everyone reads the above post you will see that I have asked to stop my removal, and decided to post in the general section. Perhaps everyone should do what I've been told to do so many times and READ!!!!

I had thought the above post would show that I'd reconsidered and was still attempting to contribute, perhaps help others and mend some damage.

All I've gotten is further criticism. I really give up and am starting to think leaving completely was the right decision, I've been hasty in asking Roberta to stop the removal I think since this just goes on and on no matter what I do.

[redhead77]

Baclofen Side Effect?

I wasn't criticizing. I was just trying to reiterate where all the animosity might be coming from. I will refrain from commenting anymore as I don't want to cause more damage.

[Murphyx]

Baclofen Side Effect?

Oh for God's sake. It's been pointed out to you why people were pissed off with your posts:

I think it's the way you said it, as in so many other posts, that made people think you are "bad-mouthing" baclofen for whatever reason, which could spread doubts, misconceptions, and fears about baclofen, which in turn could scare people away from baclofen, which in turn could cost lives. A lot of lives. I think that has been the worry of most of the people who have reacted to your threads (and posts) in a negative way. I hope you can understand this concern.

A compounding factor is that you start so many threads specifically about baclofen and specifically about your personal concerns about baclofen. This makes your concerns jump out at people more, who are then more likely to read them, and misconstrue your intentions. Using Baclofen in the title of a thread also makes it more likely to show up on an internet engine search (like google) and then people might get a warped picture about baclofen.

Yet you still don't seem to 'get it'. Well OK, if you're insisting on ignoring the dangers of your earlier posts then at least accept the apology from neva eva and move on. For the love of God just get over it.

Yes, yes, I know we're all meant to be ultra supportive and not criticize each other and I'm just a big nasty bully blah, blah, blah...