This Redhead's Baclofen Thread

[redhead77]

This Redhead's Baclofen Thread

No UKB, cause I wasn't honest about it.

[Lo0p]

This Redhead's Baclofen Thread

I can't tell you when, but our time is coming. These days are numbered. We won't have to hide anymore.

:hug:

[LadyLush]

This Redhead's Baclofen Thread

Red,

You go Red! Don't let our past define our future. You are an inspiration! And I am on your "tit" schedule too! (I hope everyone knows what that means :-)


Lady

[_serenity_]

This Redhead's Baclofen Thread

Red--

Sorry for the delayed reply. I was feeling sick and "off" myself, and didn't post much for a few days.

I really do feel like your circumstances do warrant a quick call to Dr. L. Maybe a slower titration protocol, especially at the lower doses when (as has been mentioned before) you are going up in 50% or so increments. I found the lowest doses to be the hardest, since my body needed time to adjust. I did find that the I could eventually learn to compensate for the forgetfulness I experienced at the lower doses, but I also wasn't in a life-or-death profession. Your job certainly requires you to be at the top of your game, so it might be worth seeing what he has to say.

[redhead77]

This Redhead's Baclofen Thread

I spoke to Dr L this am. I again titrated up yesterday, I am now on 50mg/day. I am again suffering severe SE's. I can hardly function. I was feeling good at 30mg, but not for the first couple of days. I think it took 3 days for me to feel good. He asked me if I was drinking and I told him I've cut back up to half of my usual intake. He felt that was a very postive response for 30mg and maybe I'm really sensitive to the drug. He wants me to stay at the same dose for the next 9 days till my next appt.

I know many on here have had a good response if they titrate up when experiencing SE's. For me so far (and I don't have much time doing this), it seems I have the SE's when I go up. I just hope I'm adjusted to this dose by the time I go back to work. I just wanted to give you all and update.

Redhead

[bleep]

This Redhead's Baclofen Thread

Hey red,

Just a thought if you aren't adjusting well - if you drop back to 40 after being at 50 for a couple of days, to account for work, the drop will feel massive in terms of SE reduction. Then, when you are able, go back up...

[redhead77]

This Redhead's Baclofen Thread

Bleep,

That is some damn good advice. Why didn't I, or Dr L think of that? I think I will go down to 40mg tomorrow, to get ready for work the next day. He wanted me to drop back to 30mg and stay there for 9 more days. At this rate, I will still be attempting to hit the switch when the meet and greet occurs in October!!

I am very grateful to have this forum. If I were trying to do this alone, I probably would quit. It is good to have advice and support from so many of you. Thank you.

[bleep]

This Redhead's Baclofen Thread

Dr L probably wouldn't recommend it, but he seems to have short thrift with SE's. "As water" indeed! If water made people feel like this, I don't think too many people would even bath, let alone drink it!

Just a thought though - it seems to take 4 or 5 days for the dose level to effect substantially on a brain level. The SE effect is immediate though.

You are right, this forum is indeed a lifesaver.

[redhead77]

This Redhead's Baclofen Thread

It's true, I am resigning Ne. I have decided that I will never be able to get aggressive enough in my dosing to hit the switch without possibly jeopordizing a patient, my career, or both. I considered a LOA but due to some other issues, hospital politics, and a certain man I work with, I've decided it is best for me to go. Truly, it is a very stressful job, and right now I need to minimize the stress and drama as much as possible to increase my chances of doing this successfully. Also, the children's father is moving out of state and visitation is done according to my strange work schedule. He has them on the long weekends and holidays that I work. I would have an impossible time finding daycare with my hours.

This is the most important thing I can do now. I want this so badly. My children need a healthy mother.
I don't want to be this person anymore, and I'll go to any lengths to make it happen. I'm taking 6 weeks-2 months to try to hit my switch and then come down to a level I can work on. I'll decide at that time if I should go back to a similar area of work or look for something a little less stressful for a while. I'm very fortunate that there are many jobs available in my field with the current economy. I will certainly miss this job. It's challenging, exciting, and best of all, I'm really good at it. There's not much in my life I feel good at. I guess first things first. I'm leaving on great terms, I can always go back when I get well.

[bleep]

This Redhead's Baclofen Thread

Way to go red. Really putting your money where your mouth is, and I wish you the very best of journeys.

Thinking of you, good luck with this.

[Guest]

This Redhead's Baclofen Thread

Wow Redhead this is some big commitment, doing whatever it takes!

[redhead77]

This Redhead's Baclofen Thread

Just got off the phone with Dr L. My head is spinning. It was supposed to be a therapy session but just turned to baclofen and the current drug wars. I am hesitant to repeat verbatim what he said to me but this stuff is crazy. We know Big Pharma is running the show, but they are literally letting masses die. Not just with alcoholism. Edostan, have you heard anything about japan obtaining a drug that has an extremely high cancer cure rate. We just sold it to Japan for 30 million.


No one can touch or study baclofen. They will not be able to obtain a research grant again. Career over. It's really left to the people. Soon, there will be enough of us, they will have to listen.

[redhead77]

This Redhead's Baclofen Thread

Dr Ameisen is of course fighting and trying to get things done, and I guess he's making some progress. I know the Dutch study is happening, but research here will be unlikely. They are told if they do it they will never get a dime again. I asked Dr L how he copes with the critical view of his peers. He said he doesn't. He told me every psychiatrist and addiction expert that he knows BELIEVES this is a cure. He also works for a major research university and they won't touch the stuff.

[Evey]

This Redhead's Baclofen Thread

All that I can say is "wow."

[Topsy-Turvy-Tracy]

This Redhead's Baclofen Thread

Red, I'm impressed with your commitment. Dr. L's too.