Important re: titrating down

[redhead77]

Important re: titrating down

I smell a rat. I'm not sure who isn't being truthful, but someone isn't. Dr L told me he works closely with Dr A. They are personal friends. So, Paul either he is totally full of it, or someone else is. The statement posted was totatlly a generalized statement. Am I supposed to buy and read through all of his publications so I can determine how TO TREAT MYSELF? He had also posted here on MWO that one shouldn't treat themselves and should be following a knowlegeable physician's advice.

Since Dr L is one of the only knowledgeable phisicians in my country (or so we've thought), and I'm going to continue to follow his advice. He had clearly advised a number of patients on here, and some have found their switch. Whether or not to stay on the same dose is probably going to be an individual thing. There have been a great many people who have titrated down on here and have done well, and some others who haven't.

I have considered deleting the thread in which I talked to Dr L and what he said. I don't want to be putting out misinformation regarding baclofen. I think I will leave it posted until Dr A can post more specific things on his thread. He could do this without giving medical advice, yet he chooses not to. And Paulslice, I have no idea who you are, and whether or not your genuine. I have to assume you are, but I did meet Dr L and he is for sure real. So, I refuse to jump on this run away train until I have more information. One last thing. Paul, did you post exactly what Dr A wrote back to you, or did you summarize?

[Ne/Neva Eva]

Important re: titrating down

WAIT A MINUTE!

WAIT WAIT WAIT!
Let's not jump to any conclusions, okay?
I think it's fair to say that doctors around the world are sussing this out as well. Many with the best of intentions, right?
Dr. L is doing the best with the information he has and has his eyes on the goal, (sobriety for us) for sure.
Dr. A cannot weigh in here.
Let's keep the dialogue open without jumping to conclusions.

I suggest we start with titration. Did the two most recent patients that have seen Dr. L receive the same protocol? Redhead, will you repost yours again in this thread?
https://www.mywayout.org/community/f2...ons-47246.html
I'll see if I can track down the other person, sassy? lush? And ask her to do the same.
I'll repost Dr. A's protocol from the book and the research when time permits (very soon!) Then newbies can suss out where/what/how they want to take baclofen. No medical advice need be given, right?

Let's just start with the facts. We have Dr. A's protocol in his book and his research. And yes, I think that's a good place to start. I see no reason to distrust Dr. L, and he is my prescribing psychiatrist. Let's just get the facts straight and figure out how to help people where they are, shall we?

https://www.mywayout.org/community/f2...ion-47247.html

[Lo0p]

Important re: titrating down

paulslice has an amazing story. When it happened it was little too much for sensitive personalities here on MWO. It was a bit before it's time for this place when it happened, but I think we'd all be very honored if he could find the time to share it someday soon!

Redhead, there is no "rat". I highly respect Dr. Levin and trust him with my own treatment.

That being said, I've been around here for quite a while. I've seen many people paraphrase him, a few people quote him and even more than one post his titration protocol for a new patient. There are many inconsistencies. Both within his own advices given out and amounts and speeds of titration. Hell, he even gave me a different one than the one you posted (but I'm not new so it doesn't apply here).

paulslice absolutely did not follow a titration schedule like one handed out by Dr. Levin. He followed one more like mine. If I am counting correctly he hit his switch in like 9 or 10 days. I may be putting words in his mouth (so correct me if I am wrong) but I doubt he would have it any other way. I believe it saved his life.

[Lo0p]

Important re: titrating down

And +1 to what neva said. I meant to say some of that but forgot. She knew that apparently and preemptively wrote it for me whilst I was composing my own post.

Just between all of you and me, I think she's fishin' for a date or something...

[redhead77]

Important re: titrating down

Okay guys. I know that previous post sounds a tad bitchy. Just a tad. My apologies Paul for sounding like I'm being critical. I wrote that at 4:30 am. Lack of sleep and stress. I think there is a lot of heresay. I suppose that happens when human guinea pigs are conducting there own experiments with a powerful drug.

I believe that Sassy was given a slightly different tit schedule than I. She wrote to me last weekend, when I was having the SE's at work. I don't think she jumped up after 4 days like I did. Which btw, was not the best thing for me to do.

I haven't reread what I wrote about my visit with Dr L, but I do believe I said, in his experience. He never said to me that Ameisen told him we had to stay on our switch dose. I believe it was coming from him alone. I really don't assume. He doesn't talk about Ameisen's personal experience to me. I don't press him to, I can tell it makes him uncomfortable. I wouldn't want to be giving personal information out about my friend either, to the public. Ameisen has and will share what he wants with the public.

Neva and Loop, I have a few concerns that I can't post on here. I will PM you both later tonight when I have some time.
Again Paul, my apologies for how I sound in my previous post.

[RedThread12]

Important re: titrating down

Ditto what LoOp says regarding PaulSlice. (I seem to ditto you a lot, LoOp). I was tangentially involved in his story and am certain that he saved his life due not only to his commitment to do so, but because of his intelligence and the intelligence of those around him in sussing out accurate information from mis-leading information here on this board; and utilizing every tool available.

I very much appreciate your posting, Paul, which lets me know that you are still going to great lengths to get accurate information. Thanks for bringing it to the board. And yeah, I hope we hear more from you when the time is right.

[paulslice]

Important re: titrating down

Hey folks

No offence taken Redhead. For the record, I did post the exchange with Ameisen in its entirety, with the exception that I left Dr. Levin's name out. I had written to Ameisen: " I've heard recently, through Dr. Levin, and with some alarm..". I left his name out on the post because I'm concerned about slighting him. Not sure if that's necessary.

I got a friend of mine in Winnepeg (with whom I had attended a 3 month rehab a couple of years back, and who of course was still in deep trouble) to get on the bac program. He went up to 380 before he switched, and of course was a complete zombie (though nonetheless thrilled). He spoke to Dr. Levin at that point and asked about how to titrate down, and was told that the new regimen was not to. Cue the horror film strings. So I called Levin myself. He was in the middle of a session with another client, so our exchange was brief. But I asked him if this was true, and he said "yes that's the new information coming from Olivier". Cue more strings. So it was then that I emailed Dr. Ameisen.

I have since forwarded that email to Dr. Levin, but haven't heard back. I'm wondering if he's embarrassed or confused or what. Or perhaps he didn't even see it. I'm thinking of calling him, but for some reason am a little trepidatious.

I have nothing but respect and admiration for Dr. Levin. He's been incredibly generous and helpful to me. I know for a fact that he and Ameisen are very close. I would have to believe that it's just what Ameisen wrote "it has probably been misunderstood". Though it seems incredible.

I really should share my story - it was quite a nightmare rollercoaster, but perhaps this isn't the thread (what do you folks think?). I can tell you that I've been coasting at 160 for some time now, but I'm bumping up to 180 because I've been having that extra drink in the evening, and last night found myself actually craving, which was a shock, and knocked back a couple of shots of rum, with that "ahhh" effect. Not good. But I'm not alarmed. I was up at 180 when I went to Cuba aver Christmas, at an all inclusive, booze galore, and had to really work to choke one or two back just for the sake of it. The SEs at that dose were still bugging me, but I don't think they will now.

Sorry if this is a bit long.

Peace and love to y'all...

[RedThread12]

Important re: titrating down

Hi Paul: Please forgive my warped sense of humor. When you're ready to share your story, my vote would be for your own thread. That way you could do it in dramatic installments, guaranteeing that the entire Med Thread community would be hanging onto their computers, waiting for the next unbelievable turn of events!!!:H:H

I know the story is nothing to laugh about, but I feel so much joy knowing that you are doing well that I guess my mind took a spin to the light side. You're on the other side now, and the baclofentists have greatly increased both in number and in inclusiveness. We'll be reading and learning whenever you're ready to write!

[redhead77]

Important re: titrating down

Incredible indeed. I was confused as to the context when you first started this thread. I didn't know if you were writing about what I posted or had your own experience, or even if you meant Dr L. Thanks for clarifying. When you find out what he says about this, if you call him, could you post on it? I agree with all the inconsistencies out there. The inconsistency seems to stem from one place.

[Ne/Neva Eva]

Important re: titrating down

Paul, I too am looking forward to your story and think it would be great on a thread...
In installments and with updates.

Redhead, I'm unearthing the old titration thread. It'll be interesting to suss out what the best suggestions are in terms of titration and protocols.
EDIT: Damnit! Turns out that thread died a death for a reason! I'll try to find something more suited to the discussion or someone can start one! oops!

[redhead77]

Important re: titrating down

Neva,
I don't know how to move the titration protocol he gave me to another thread. I'm computer illiterate. I haven't tried doing the quote thing that you guys do because I don't know if it's going to work and I'll probably post something screwed up. I'm still trying to learn how to work this site. My lack of computer skill are embarrassing for sure!! You would think I was an 80 year old, rather than in my 30's.

Sorry to hijack. Just sayin.

[Ne/Neva Eva]

Important re: titrating down

red, (sorry paul, again)
:H:H:H
We've all been there! And I'm really new at navigating this kind of stuff, just not so new on MWO obviously.
pm'd you.
:h