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**Otter** · February 22, 2011, 04:18 PM

Treatment for Baclofen Withdrawal

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**Guest** · February 22, 2011, 06:50 PM

Treatment for Baclofen Withdrawal

But weren't they actually trying to treat him for the problems he was having with the Baclofen in the first place?Which is why they opted to take him off it. Ok we know he should have been weaned off it, but they were trying to remove the Baclofen symptoms. Would titrating down slowly have meant he had to suffer the extreme sides for days longer?

**gyco** · February 22, 2011, 07:22 PM

Treatment for Baclofen Withdrawal

maybe the dosage is to high i took it for hic ups was it hard to come offf off ws there withdrawl yes

**Otter** · February 23, 2011, 05:20 PM

Treatment for Baclofen Withdrawal

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**bleep** · February 23, 2011, 05:23 PM

Treatment for Baclofen Withdrawal

I agree Otter. Fucking unbelievable, more so with every passing day.

It is peculiar.

**Guest** · February 23, 2011, 05:29 PM

Treatment for Baclofen Withdrawal

Useful information there Otter. By the way I meant from the Drs point of logic since I do understand the Baclofen mechanism myself. They will have just thought "hmmmm, stop the Baclofen since it's giving him these symptoms".

**Ne/Neva Eva** · February 24, 2011, 07:31 AM

Treatment for Baclofen Withdrawal

Otter;1065053 wrote:
What happens is this: You take too much and get the effects of high dosage as Paul experienced. So, you stop and if you stop dead then you get these withdrawal symptoms. If you get them you have to immediately start taking Baclofen again, don't try to go cold turkey or use something else because it won't get rid of the symptoms.

What happened to Paul is that the hospital did not reinstate Baclofen so his GABA B receptor was left untreated and he continued to have withdrawal symptoms. Thinking that they could deal with this by using other medications, they overdosed him on those meds, but left him with the untreated withdrawal symptoms from Baclofen withdrawal.

I think if anyone gets into trouble with Baclofen at high dose and withdraws they should have this article to show to a doctor to avoid what happened to Paul.

If you feel that your dose is just too high then don't stop taking Bac, just cut back until the heavy side effects go away.

By the way everybody, I am not doing this for the good of my health or to save humanity. This is real and it is not good. When the eff is this going to break wide open. I have not seen any newspaper articles about Baclofen or any reference anywhere in the press or on TV to Baclofen recently, or to the trial in Amsterdam. It is bizarre. So many people having success with it and no one out there seems to care. Someone do a press release of some sort so we can send it to newspapers........

Even if this double blind trial is successful does anyone really think that it will change how doctors prescribe? The only way to get Baclofen accepted is to get publicity and get people phoning their doctors en masse, like they did in Paris.

Oh, and get this!!! Our specialist said he would contact our doctor to tell her to up my wife's dosage to 140 per day. So, the doctor, instead of increasing the dose, reduced her dosage from 100 mg to 60 mg per day, without so much as a telephone call! I just don't know what to say. This, after two years of increasing dosages, Jonathan Chick advising to increase to 100, a new specialist...where does it end?

God, Otter. You guys have faced such a difficult time, it's astounding. I'm so sorry and wish I could ease that in some way.
I have included the very vital information you have provided in the packet I'm going to drop off for doctors to try and find one locally to prescribe. If nothing else at least they'll be aware of the dangers of withdrawal, though now that I'm on my way down the bac ride, it hopefully won't be a pressing issue.
That said, my husband and I both carry my prescribing psychiatrist's name and information with us at all times. I have back up bac hidden in several places, and my husband is under specific written instruction to insist on bac should I be hospitalized, and to sneak me some if I can't get it. (a nod to terryk's partner for that!)
This isn't a function of paranoia anymore, it's a function of being practical. I intend to stay on bac for a long, long time. These issues will have to be addressed for that reason alone.
Thanks again for your tireless hard work. If there is ANYTHING I can do to help from this side of the pond email or pm me.

**Otter** · February 25, 2011, 04:21 PM

Treatment for Baclofen Withdrawal

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**Otter** · February 25, 2011, 04:32 PM

Treatment for Baclofen Withdrawal

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**Guest** · February 25, 2011, 04:50 PM

Treatment for Baclofen Withdrawal

I have heard they do offer a few other things before methadone to help. Painkillers including an opiod-based Tramadol. I was once prescribed this for something completely different - I'm not a heroine user but I can understand from the way I reacted that it would be used in heroin withdrawl. It is highly addictive, and I enjoyed it too much! I knew it shouldn't be given to anyone with any addictive nature, but it wasn't until I met someone from NA that I was told it is not a million miles away from heroine, so much so it is used in withdrawl.

**Otter** · February 25, 2011, 05:03 PM

Treatment for Baclofen Withdrawal

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**Ne/Neva Eva** · February 25, 2011, 05:17 PM

Treatment for Baclofen Withdrawal

Otter, that may be the case, but you were the only one who thought to look for it. And it may save some of us from exquisite pain, maybe worse.

Your previous post fills me with despair. I am so sorry.

Karen

**Guest** · February 25, 2011, 05:17 PM

Treatment for Baclofen Withdrawal

Otter;1066168 wrote: Hi,

I was using that as an example. Paul was using Baclofen and when he went into withdrawal the hospital should have reinstated it. The drugs they use do not stop Baclofen withdrawal because they treat a different part of the brain from that part which Baclofen affects. I found the article I have posted here very easily by doing a simple Google search. It would not have taken more than a few minutes for a doctor to have found out how to treat Baclofen withdrawal.

Try typing "Baclofen withdrawal" into Google and the article will come up second or so. Not exactly rocket science.

Otter I do not need to type that in because I already know, as well as believe what you have said. I am already familiar with typing in all sorts of terms with google for anything I need to know, and confident in doing so. If I needed to know about baclofen withdrawl, I would certainly type that in.

I am not questioning anything you say, just that you think I am and was simply pointing out your example probably wasn't the best one.

**Otter** · February 25, 2011, 05:46 PM

Treatment for Baclofen Withdrawal

Ukblonde;1066174 wrote: Otter I do not need to type that in because I already know, as well as believe what you have said. I am already familiar with typing in all sorts of terms with google for anything I need to know, and confident in doing so. If I needed to know about baclofen withdrawl, I would certainly type that in.

I am not questioning anything you say, just that you think I am and was simply pointing out your example probably wasn't the best one.

:h

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