Baclofen bollocks?! WTF!!!

[Guest]

Baclofen bollocks?! WTF!!!

This is correct but there will be a line for everyone, and how bad do the effects have to be for other methods to be considered?

You can go on for ever, until the cows come home about how bad drinking is for you. But there is a limit, and I thought high dose, long term studies hadn't been run yet.

We just don't know, and there will be getting off points for everyone at some stage.

[Charlieboy]

Baclofen bollocks?! WTF!!!

Am going for an MRI scan tomoro. Lets see what that reveals. It could be numerous things....no real idea of severity yet either.
As for my supply of Bac, there is no pamphlet in it. Baclofen Tablets IP, Lioresal on a pale blue and white packet, manuf by encore healthcare pvt ltd in india and marketed by Novartis India Limited.
Who knows....I know that I am going to seek out Dr Chick in Edinburgh for a prescription going forward, just to make sure I am taking good stuff
Cheers

[new again]

Baclofen bollocks?! WTF!!!

Just for the record:
I was mixing what seems to be the same Lioresal as Charlieboy, purchased on-line, with prescription Baclofen filled here in Canada. I've been on very low doses and was breaking the Lioresal in half (or quarter) most of the time, until I got up to 67.5. At the same time, I went through some nasty personal stuff that triggered pre-existing PTSD and my SEs became truly frightening. I backed down to 40, and worked my way again to 60, but the Lioresal has continued to be a problem. I've discontinued it, and now will not use it again. The prescription Baclofen suits me much better. Can't say if it's the formulation of the med, or the formulation of me , but it doesn't work. Maybe when I start to taper off and break it in half again, it will be okay.

[Otter]

Baclofen bollocks?! WTF!!!

Charlieboy,

Your doc is just an arse.

[Longshot]

Baclofen bollocks?! WTF!!!

Charlie, you proclaimed your homopath was a doctor a while ago.

Is your friend the same homopath? What is your friend's qualifications?

My doctor prescribed my Baclofen in a heartbeat. A friend who is a hospital pharmacologist (she designs drug programs for Chemotherapy) liked what she read about Baclofen but didn't understand why there weren't any british trials. Another friend again a GP, was open and receptive to the idea, and liked what she read.

So I have two physicians. My GP who had already been reading about Baclofen separately from me, had no qualms about my asking for prescription. My pharmacologist friend, just took the drug name, went through pubmed, and liked what she read. My GP friend was immediately receptive.

So please. Ask your friend exactly where they read about the side effects and the dangerous. The articles. Where they read them. Everyone here would like to know more. Please stop, relax, and ask for more information.

For all our sakes.

Thank you.

[Cinders]

Baclofen bollocks?! WTF!!!

Charlieboy,

I am not going to speak to the safeness of efficacy of your Baclofen pills. I can't.

However, I do want to say that the medical community as a whole has been taught that alcoholism is simply treated with the 12-Steps. That is all they know and that is all they are comfortable with.

Luckily, there are other doctors out there that are willing to step out of that comfort zone and delve into other options. Many have seen that 40% of us die from this addiction. They don't like it. Just like they hate smoking for the same reason.

I can't advise you what to do or where to get your meds if you choose to stay on Baclofen but I can tell you that I have seen people on this site AND the Sinclair site (Naltrexone) get well. These people did not necessarily use AA or 12-Steps as an adjunct.

Even though this is a small universe of subjects, statistically speaking, it is like a drug that cures any deadly disease. If it works for some, there is huge interest and at the end of the day, those who are dying are willing to try anything.

My hope for you is that you find your way out, whether with Baclofen, AA, or anything else.

Love,
Cindi

ps As a USA citizen, I do have to tell you that the word bollocks tickles me. I so want to use it but others here would look askance at me. Still, it is a good word that conveys exactly what it means. :-)

[bleep]

Baclofen bollocks?! WTF!!!

I hope your MRI can point something out Charlie, doesn't sound like much fun in your head at the moment. It would be the first time, that I'm aware of, that baclofen has caused severe and prolonged headaches, although I may be wrong.

Good luck man.

[Charlieboy]

Baclofen bollocks?! WTF!!!

doc friend

Thansk for all the replies. I prob should not have posted anything about what this guy said, I don't know him all that well, but when u have someone ranting down the phone at you with all sorts of 'evidence', scary stories and you have a chronic headache and are genuinely worried about your head/the BAC you are taking etc, then this is the place to come for reassurance...

For the record, I never said I didn't believe in Bac, just that I was Confused and I needed to get that out there on this forum

And as ever, people on here have been fantastic

I am genuinely sorry if I have worried anyone. The stuff clearly works and as I have tried to make clear throughout this post, I have NO intention of stopping Bac, just want to improve my supply chain.

Thanks

[Ne/Neva Eva]

Baclofen bollocks?! WTF!!!

Morning, (for me!) Charlie.

I think that's a grand plan. I've had headaches, too. Disconcerting to say the least, when coupled with other SEs and knowing there is a bunch of brain-reconfiguration going on!

I also had an MRI and was MUCH relieved when it turned out my brain was normal-ish. (too bad they don't have a scan that'll find that pesky addiction lobe. The little tiny one that ruled my life for so damn long!)

Anyway, it's much better to get a handle on that stuff early. I know I felt much better afterward. Now I consider it a baseline! When someone wants to study us to see just how good this bac stuff is, they'll have my first MRI. The next one will show that my amygdala is firing in perfect sequence and all is right with the world.
My IQ has jumped up quite a bit, and I can now throw a perfect pitch. (sorry, that's a flat out lie and the pitch thing is an inside joke from another thread.)
Good on you, Charlie. 'Line 'em up and knock 'em down' is my new motto. (that and the standby jkttdp!)
I'm impressed.
hugs!
Ne

[missyabby1]

Baclofen bollocks?! WTF!!!

Hi Charlie,

Just to get the record straight.......I don't take Baclofen. I take Campral. Has been a miracle drug for me. I think you were right to come to this forum and air your fears... god, I would considering how scared you must be. I don't see any need to apologise at all or try to reassure people that you are continuing with your bac medication. Why would you do that? You are here to get yourself sorted , not to please or let anyone down.

Sometimes, Charlie, people need to have their hard felt beliefs consolidated and validated by others and will cheer others on to have these beliefs too. It happens in all walks of life and especially to the vulnerable.

I don't know what pm's you have been receiving....there is little posted here to indicate that. Please be reassured that I am not trying to persuade or dissuade you on your path to the road to sobriety..............but your last post really worried me.

Your choice is YOUR choice and your fears definately need airing without the need for apologies or reassurance to anyone. I have been following your thread and have felt for you a lot. Don't apologise for what you "hear" and always be aware of other's agendas, whether they recognize them or not. I so wish you luck on your path and sincerely hope Baclofen is the answer for you.
And I sincerely mean that. I think that Baclofen may well be the "out" we are all seeking here but, once again, don't feel afraid to question and express your fears and not be "jollied" along.

Missy :h

[Cinders]

Baclofen bollocks?! WTF!!!

Charlieboy;1087876 wrote: Thansk for all the replies. I prob should not have posted anything about what this guy said, I don't know him all that well, but when u have someone ranting down the phone at you with all sorts of 'evidence', scary stories and you have a chronic headache and are genuinely worried about your head/the BAC you are taking etc, then this is the place to come for reassurance...

For the record, I never said I didn't believe in Bac, just that I was Confused and I needed to get that out there on this forum

And as ever, people on here have been fantastic

I am genuinely sorry if I have worried anyone. The stuff clearly works and as I have tried to make clear throughout this post, I have NO intention of stopping Bac, just want to improve my supply chain.

Thanks

Charlieboy,

I, too, suffer from headaches and know what you are dealing with.

Mine, however, have an etiology that has absolutely nothing to do with Baclofen or drinking.

Well, okay, the drinking exacerbates them.

I won't go into their cause because I do not want to scare you. My headaches are my own issue, whether I drink or not.

But, you did not scare me or anyone else here.

No worries.

I hope you find the root cause of your headache and I hope you get some relief.

Take care.

Love,
Cindi

[TracyA]

Baclofen bollocks?! WTF!!!

Charlie, please let us know what the MRI shows. Good idea to go through Dr. Chick too. Like Lo0p said, brand really mattered to me - it was the difference between normal SE's (unpleasant for sure) and feeling poisoned (beyond my ability to cope). Getting it locally may help ensure your supply too.

I'll be thinking of you today.

[beatle]

Baclofen bollocks?! WTF!!!

Seems to me a new thread should be started on different brands of bac and how they affect different people. For me, this could have been the key to what has happened that made me suffer 19 months trying (and failing) to reach the goal.

I seem to recall that there was a thread started once on this subject -- maybe it can be resurrected... or maybe it's time for a new thread. Any thoughts?

[Charlieboy]

Baclofen bollocks?! WTF!!!

hey!

just got in....had the MRI....they dont give the bloody results...gotta wait til tomoro
Went to see my chiropractor, he looked at the images and doesnt really get it but said he could see nothing too sinister
The opinion is that i have a viral infectiion in my brain/head...a lesser form of meningitis....
headache still rages. Its been a very weird couple of weeks.
Will know more tmw.
thanks
C

[Ne/Neva Eva]

Baclofen bollocks?! WTF!!!

The waiting is lousy. They were going to make me wait for 10 days! I went to the hospital... They didn't understand my sense of urgency! I understand yours.

Hope you get to the bottom of it and SOON, Charlie! Thoughts are with you.
Ne