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    #31
    Another note from Dr Ameisen

    I use this Doctor because she is understanding, most others would have told me I was doing something stupid and to stop at once. She knows I've tried everything, and supports me completely. I'm not sure another would be the same, in fact I know not which is why I moved to her when my usually supportive GP was giving up on me.

    Some of it I think is that I'm in a small town, rural area so they do not come across this often. She told me maximum dose for prescribing is 100, we have seen here that SEs can vary with dosage levels. Since 180mgs is way over that, almost double in fact, so I don't see how she can necessarily predict SEs at that level?

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      #32
      Another note from Dr Ameisen

      Murphyx;1092461 wrote: So it was about religion then? As I said, I have no idea why faith would be listed as a treatment option.
      Here is the Miriam Webster definition of faith:

      Faith - Definition and More from the Free Merriam-Webster Dictionary

      Note, it is not all aligned with religion. Faith is not a singularly religious term, despite what we all assume.

      Speaking of assumptions:

      Some people make assumptions, based on a rumor, that a person has done something they have not. Some people take it on faith that the rumor is true.

      Is that based on religion?

      I don't think so.

      However, having faith that something one does and believes will help them get well is an assumption. I think it has a place in a treatment. It is also faith, whether based in fact or fiction.

      Cindi
      AF April 9, 2016

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        #33
        Another note from Dr Ameisen

        Yes?
        AF April 9, 2016

        Comment


          #34
          Another note from Dr Ameisen

          Cinders;1092720 wrote: Here is the Miriam Webster definition of faith:

          Faith - Definition and More from the Free Merriam-Webster Dictionary

          Note, it is not all aligned with religion. Faith is not a singularly religious term, despite what we all assume.

          Speaking of assumptions:

          Some people make assumptions, based on a rumor, that a person has done something they have not. Some people take it on faith that the rumor is true.

          Is that based on religion?

          I don't think so.

          However, having faith that something one does and believes will help them get well is an assumption. I think it has a place in a treatment. It is also faith, whether based in fact or fiction.

          Cindi
          That was freakin' AWESOME!!
          Look at a stone cutter hammering away at his rock, perhaps a hundred times without as much as a crack showing in it. Yet at the hundred-and-first blow it will split in two, and I know it was not the last blow that did it, but all that had gone before.
          - Jacob August Riis

          Comment


            #35
            Another note from Dr Ameisen

            Cinders;1093099 wrote: Yes?
            Sorry Cinders, I didn't realise you were actually expecting a reply.

            Let's recap:
            bleep;1092380 wrote:
            PAWS is too complex to go into in detail here. Treatment includes therapy, nutrition, exercise, medical and emotional support and patience, along with faith in the process.

            Murphyx;1092395 wrote: I have no idea why "faith" could be listed as a treatment.
            Cinders;1092449 wrote:
            Murph, faith doesn't always have to be about religion. I have faith the sun will come up tomorrow. That doesn't have anything to do with religion, unless you are a Mayan.

            Faith means hope. We all have hope. You have done well, I have faith you will continue to do well and Baclofen is one of the reasons.
            Murphyx;1092457 wrote:
            So that's what the 'faith' part of the treatment is referring to? Faith that the treatment works?
            Cinders;1092458 wrote:
            No, the treatment posted was about faith in a higher power.
            Murphyx;1092461 wrote:
            So it was about religion then? As I said, I have no idea why faith would be listed as a treatment option.
            I'm sure you can understand my confusion here.

            Do you think "faith", as listed as a form of treatment for PAWS, was used in the sense of faith that the treatments will work, or relying on the healing potential of a god or higher power?

            If the former, surely that applies, or not, to all medical interventions. If the latter, then that is way beyond scientific rationale and venturing into faith healing. Either way it seems to be utterly irrelevant. Hence my original post: "I have no idea why "faith" could be listed as a treatment."

            The unexamined life is not worth living

            Comment


              #36
              Another note from Dr Ameisen

              Zenstyle;1093196 wrote: I'll be darned if you are not one annoying irritation Murphy. It doesn't help that my SO's last name is Murphy either... I think I let it slide because of that. But, quite frankly, you are contentious and rude and I don't see you offering anything to anyone in the way of support.

              Maybe you guys just like to "debate". One side effect of Bac I never got. Just wish you could be a bit nicer while you're at it.
              If you wish to make offensive and personal remarks please do so by PM rather than disrupting the forum.

              The unexamined life is not worth living

              Comment


                #37
                Another note from Dr Ameisen

                Murphyx;1093237 wrote: If you wish to make offensive and personal remarks please do so by PM rather than disrupting the forum.
                :H:H:H:H:H Funniest post I have seen in a long time...

                "It's not your job to like me, it's mine!"

                AF 10th May 2010
                NF 12th May 2010

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                  #38
                  Another note from Dr Ameisen

                  one2many;1093245 wrote: :H:H:H:H:H Funniest post I have seen in a long time...
                  .

                  Murphyx;1093237 wrote:
                  If you wish to make offensive and personal remarks please do so by PM rather than disrupting the forum.

                  The unexamined life is not worth living

                  Comment


                    #39
                    Another note from Dr Ameisen

                    Cinders, I wasn?t intending to reply to your previous post, there didn?t seem any point in doing so, but your follow up of ?yes?? suggested to me that you expected a response, which I gave. Since then, your friends appear to have decided to attack me, I?m not sure why, but they must have their reasons. To prevent yet more unpleasantness, with the by now customary series of insults and disruptive comments, I won?t be adding to this thread.

                    The unexamined life is not worth living

                    Comment


                      #40
                      Another note from Dr Ameisen

                      Okay.
                      AF April 9, 2016

                      Comment


                        #41
                        Another note from Dr Ameisen

                        bleep;1091813 wrote: I recently contacted Dr Ameisen, and received a reply.

                        In it, he asked me to stress that it is not out of any discourtesy that he doesn't respond to emails, it is simply that he does not have enough time. It would be a physical impossibility to reply to all the emails he receives.

                        He also stresses he has absolute faith in baclofen
                        over the other treatments available, and asks me to draw attention to the potential side effects of Topamax, one of which is outlined here:

                        Topiramate as Treatment for Alcohol Dependence, January 30, 2008, Spaeth and Mantravadi 299 (4): 405 — JAMA

                        I post this link at his request.

                        Dr Ameisen has said that he intends to post here in the near future, although the comment ended with a question mark, so read into that what you will.

                        My initial reason for contacting him was to query the maintenance dose, as I had been struggling to come to grips with this. He stated that some people are able to reduce their dose after reaching indifference, as he did, others need to remain there. My take on it is that trial and error seem to be the only way to determine which of these you are.
                        The reason for this thread.
                        AF April 9, 2016

                        Comment


                          #42
                          Another note from Dr Ameisen

                          Bump

                          Bump. I think it is important for us all to see and acknowledge the importance of those folks that have been around awhile and are still passing their knowledge forward. Bleep in one of them.

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