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    Can I vent for a sec?

    I'm currently at 180mg a day on baclofen and life is great. It has helped me with my drinking problem like nothing else has in the last 10 years and obtaining it has been relatively painless with the help of the wonderful Dr. L.

    But I'm traveling this month and currently 12 hours away from my normal pharmacy. I ran out of my last baclofen refill so I took my pill bottle to Walgreens today to get my next refill. I assumed I was fine because I had 1 refill left and the pill bottle had the prescription number, my pharmacy's phone number, and all that jazz . Easy enough, right? They just call my normal pharmacy, transfer the prescription refill, and give me my 40 day supply, right? Nope. The Walgreens pharmacist tells me that because the bottle says, 'Take as directed' they won't refill it without specific dosage instructions. They have to talk to my Dr. So it's Saturday and I'm completely out of baclofen. I tell the pharmacist that it is dangerous to go from 180 to nothing. She says, 'yes it is'. I say, 'I'm going to have to go to the ER if we can't reach Dr. L.' She says, 'yep.' I call Dr. L at home and he's not there and I wouldn't expect him to be. I feel AWFUL that I even have to attempt to bother this man on a Saturday after all he's done. So I go to the ER, waste the ER doctor's time, have a worthless claim hit insurance, and then spend money out of my pocket. All for 5 days worth of a safe drug that I had a legitimate prescription refill for.

    I just don't understand why it's so hard to obtain a drug that is not a controlled substance, is helping so many people, and has been proven to be safe well above the ridiculous 80mg FDA limits. What is it going to take? Why aren't other Drs. open to this when it'd take so little research? What am I going to do when Dr. L retires? There is a safe, dependable treatment for something that was ruining my life, but I feel like I'm a thug just trying to buy it even with a prescription.

    Ok, rant done. I just wanted to get it out there, and of course 99% of this is my fault for not preparing, not refilling sooner before my supply ran out, and not doing it on a weekday so Dr. L would be available. All the same, here's hoping some day that HDB is accepted as the successful treatment it can be for so many of us.

    #2
    Can I vent for a sec?

    I think this is a Walgreens issue. I stopped going there b/c they also gave me problems even when I had prescriptions. I was taking Trazadone at one point and realized I needed to double the dose, with the docs approval, so I ran out twice as fast. They refused to refill my order even though I had the prescription for 4 refills. They said insurance won't accept it. I said, "fine, I will pay out of pocket." They refused even when I had a valid persciption. I was furious. Trazadone if a mild sleep aid/anti-depressant that is sold over the counter in some countries. I had the same problem with anther persciption with the same refusal to refill even with a valid prescription.

    What they are doing to you is absurd! They have the ability to give you a few days supply while the doctor gets back to them. This is especially true when they know that going off the medication is dangerous. I am furious on your behalf! I am only going to back to them because Dr. L. has suggested them but I hate dealing with them again. My other pharmacy, Osco, is fabulous and they always work with me.

    You could try taking your pill bottle to another pharmacy and see if they can help. They may not have the dosage pill (I.e. say you are on 20mgs and they only carry 10mgs) but they may just give you twice as much. Not sure. With any luck Dr. L. will call in and it can be resolved but, just in case, consider a second pharmacy as a back up.

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      #3
      Can I vent for a sec?

      If you'd like to stick with Walgreens, it's way easier to use their online refills. Just sign up on the website and you can get your refills delivered to your house. No more dealing with pharmacists hardly at all.

      Comment


        #4
        Can I vent for a sec?

        Walgreens always gave me hassles and generally sucked. Why not try some liquid bac for the trip? Or maybe that would be an issue if you are flying...

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          #5
          Can I vent for a sec?

          Holy cow that sucks. I'm really sorry.

          I use several pharmacies. And when one doesn't do what I need, and am legally entitled to, I switch. Or threaten. I mean cajole.

          This is just for people who might be lurking or for future reference: Pharmacists can refuse to fill prescriptions that they think might be unsafe, but they are legally bound to fill legitimate prescriptions. Period. In this instance, a partial refill would have been a reasonable compromise. But the fact that it was a refill would mean that s/he has a legal responsibility to fill it. Period. That's not to say it's easy. It isn't. If the pharmacy you are in doesn't have access to the pharmacy where you have the prescription filled a phone call to the original pharmacy is also a reasonable alternative.

          (I know this helps not at all at this point, Chigg. I'm just putting it out there for other people. I can totally imagine how the situation went down and why you had to do what you did. omg. It makes me FURIOUS. For you and for all of us. Sorry, really.)

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            #6
            Can I vent for a sec?

            Thanks for the comments and suggestions. I've learned my lesson well but will be much more prepared next time (god forbid) with your advice. Now I'm just praying Dr. L will be available this week to approve another prescription. I do have an emergency reserve from River back at my home a couple states over. I just didn't think I'd need it with a refill on record. Thanks also to all who are fighting to get HDB more recognized as a valid treatment. Like I said, I don't know what I'm going to do when Dr. L retires, I guess throw hundreds of dollars overseas. But hopefully other physicians will come around by then.

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              #7
              Can I vent for a sec?

              I am also hopeful you won't have to throw hundreds of dollars away. I don't want to either. I think we are getting better alternatives inside our own country (US) which can help us.

              As I get more comfortable with the medication, I am more comfortable getting rid of the entire insurance "thing" altogether. I had a terrible time sorting out insurance on the phone on Friday. Long story short, I think my coverage would be more comprehensive if I had cirrhosis of the liver than early/mid stage alcoholism. As it it now, I am just "nuts" if I need to a see a mental doctor. The message is it is best if I just progress to real physical problems then they can deal with those....otherwise "your on your own!" At least it is good to know what I am dealing with.

              Am I crazy or are they crazy? No need to answer...I just want to voice the question. I also don't want to change the subject of the thread. My real point is that we need not despair about not having a doctor backing us up in the future. Dr. L. Has been very helpful but I think we can help ourselves in the future once we are educated and have our own experience as a guide.

              Comment


                #8
                Can I vent for a sec?

                hi chigg, that's just awful....!!!!!!

                i do recognize some of it. my pharmacy (in Holland) always gives me a big hassle about my baclofen prescriptions. it's happened a few times that i have to wait there for an hour, and they agree to give it to me only with some demeaning remark that i should be happy they didn't destroy my recipe (my doctor mails it to them) 'cause they already gave me some not long ago. like they're handing out candy to some nagging kid or something!! like my doctor would send them a prescription for nothing!!
                the problem is that i'm still upping the dose every week, and my gp describes the dose i'm at at the moment i'm requesting the recipe, not taking into account my increasing the dose every week (my doctor and her secretary are not familiar with the use of high dose baclofen).

                and the pharmacy asked me in a belittling way to please not come with "recipes like this" at the end of the week. they have to order the 25mg pills i take (they by default only have 10mg pills in store). i told them, well, i'm gonna be using this for a long time to come, so can't you just order them in advance, knowing i will need them every few weeks. nope. they won't.

                i also feel like some lowlife over there, people wary to help me. horrible.

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