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    #16
    Baclofen can be dangerous

    Re-post Anna

    Dear all,


    I will try to explain why I get so emotional when it comes to Anna and why I get so angry when such articles show up.

    I “met” Anna on her blog, which she kept from the day she started baclofen. It was in the same days that I started taking baclofen, so I often replied and we exchanged our experiences.

    She blogged very detailed about her life, so very soon it felt like I knew her for years.

    Although she published all those personal details freely on her blog, when I first published this post yesterday I forgot that she is not anonymous anymore and luckily some of you reminded me of that, so I temporarily removed my post.

    Yesterday I had a very rotten day last night, I slept badly, because I was constantly thinking of Anna.
    Although by reading the article gave me information of how she committed suicide, which I didn’t know before yesterday, it certainly did not promote a good mood.
    I thought I had given it a place, but the article dragged everything up again and I could not help thinking about how terrible and alone she must have felt in the last moments of her life, being all by herself with her dark thoughts and the decision to take her own life.

    But let me tell you somethin about Anna:

    Anna was very enthousiastic about baclofen and also had a twitter account promoting baclofen.
    It worked very well for her around 80 mg and in my opinion, based on her shared experiences, she had already switched.

    Alcoholism was not Anna's only problem. She was anxious, had been suicidal before, she hated her job and there were several other issues.

    But since on baclofen, she was very optimistic.
    She had plans to change her life drastically. She wanted to quit her job and applied for a study of osteopathy, which she had wanted for a long time. She already was admitted at 2 institutes and was planning to sell her apartment to be able to pay for her so-wanted study.

    "Xadrian commented on Day Eighty-Seven – Saturday 7 July 2012.
    in response to clearhead247:
    I found out yesterday that I have been offered a place on the four-year full-time degree at the osteopathy college I interviewed at a week ago. Strangely I didn’t feel excited, just relieved. I cancelled Monday’s interview at the other college as the one I got an offer from seems to be far more respected [...]"

    A few months before her death, she had to undergo surgery for her bunions, which gave her some time-out from the job she hated so much.

    Although she still had been drinking at 90 mgs, she was able to control it and for example left a half glass of wine on the table, which she never could before.

    “clearhead247 commented on Day Twenty-Nine – Thursday 10 May 2012.
    in response to Xadrian:
    … Unlike you I have had the odd drink over the last few weeks and each time I had no desire to have any more. One example being last Wednesday when I drank half a glass of wine at a work event and LEFT the remainder (I am still in shock about that one!). But if you don't feel comfortable having any alcohol then don't drink. I feel completely indifferent to alcohol now. But if I feel like I may relapse then I will definitely stay away from it. I'm currently on 90mg of Baclofen a day and think this is my suppression dose. But I may go up to 100 or 110mg, depending on how I feel. I am not experiencing any side effects. Stay well, Anna”

    At a certain moment, she didn't update her blog anymore, which she normally did every few days.
    A few weeks later, the complete blog was deleted.
    I was extremely worried and when I found her back on this forum a few days later, it turned out that she was panicking and it turned out she had titrated all the way up to 150 mgs, which she apparently had done very quickly, because a few weeks before she was at 90 mgs.
    Clearly something had gone wrong while titrating up. My best guess is she titrated up too fast, while she probably already hit her switch around 100 mgs.

    She had severe anxiety attacks and, although she also used other medication, she blamed it all on the baclofen and wanted to go off baclofen as soon as possible.

    She had checked in at "The Priory" who told her they could get her off baclofen within 6 days.
    I tried to convince her to not to go down so fast, because of the dangers.
    The last thing she posted was that “The Priory” had indeed tapered off the baclofen within a few days. I urged her to have someone at her side at all times and told her she probably would have withdrawal effects with a peak after 3 days.

    Then it went quiet. Until the day her parents posted on this forum that Anna had committed suicide.
    That shocked me so much. She took her life on the same day I fucking predicted she would have the worse withdrawal effect.

    I still believe that "The Priory" is responsible for her death to a great extent. Which stupid, idiotic doctor can someone let taper off from 150 mg baclofen within a few days and then let her unattended? Are those the people that are supposed to save lives?

    Except for the fact that she’s not amongst us anymore, I guess the biggest frustration for me is that I saw her suicide coming and I was not able to help her, because she was apparently in a too dark place to accept any help and “The Priory” took her too an even darker place.

    I only wanted you to know that the story they published is far from the whole story and certainly not the truth.
    No overdose, but tapered down too fast, thanks to the “professionals” of "The Priory" who now trying to blame it on the baclofen.

    One big truth in the article: She indeed loved her parents very much.

    Sadly, she deleted her blog and I only have fragments left from my subscription of "following" her, but I will post the threads on MWO regarding her anxiety and her suicide below:





    Let her not be forgotten.

    Rest in peace, my friend Anna
    http://www.youtube.com/watch?v=Yu_ekkdJpHY[/video]]Don't Let The Sun Go Down On Me George Michael & Elton John - YouTube
    Last edited by Jod; June 30, 2020, 08:52 AM. Reason: Links Updated by Admin
    Today is the first day of the rest of my life.

    Comment


      #17
      Baclofen can be dangerous

      That is very very sad. It reminds me of my own story. The anxiety is almost unbearable for me. I have help that is now aware of this story so thank you very much for posting this. My doc originally thought coming off the baclofen was going to be easy. We have added Seroquel Neurontin, lexapro and klonopin so far to help with the anxiety while I titrate down 10mg per week. Seriously. There is nothing easy about taking that many pills.

      Now I am being referred to the neurology department at an Ivy League school. My doc is afraid to deal with the baclofen. The first neurologist I was referred to flatly said no. He would not treat me. It is an addiction issue and I need and addiction specialist. I am hoping and praying the department takes my case.

      Anyway, I too should not blame the baclofen exclusively. I have had anxiety in the past and that is why I drank so much. I too have a lot of personal and professional issues not going my way. But I just want people to know, it is in fact dangerous. More stories like this are likely to be coming. Ultimately this drug is likely to be scheduled.

      Comment


        #18
        Baclofen can be dangerous

        DRB120 are you the kid who was abusing baclofen, trying to get high off it? If not I apologise for mixing you up with that prat.

        BTW, someone mentioned Dr Chick in Edinburgh. As far as I know he doesn't prescribe HDB. He only scripts up to 80mg, which is useless for most people.

        As far as I'm concerned the Priory should be prosecuted for what they did to that poor girl.

        Baclofen works, people! Treat it with respect and it could save your life.
        "My fault, my failure, is not in the passions I have, but in my lack of control of them." Jack Kerouac

        Comment


          #19
          Baclofen can be dangerous

          ifulovelife2;1531028 wrote: As far as I'm concerned the Priory should be prosecuted for what they did to that poor girl.
          Executed, as far as I'm concerned.
          Today is the first day of the rest of my life.

          Comment


            #20
            Baclofen can be dangerous

            ifulovelife2;1531028 wrote: BTW, someone mentioned Dr Chick in Edinburgh. As far as I know he doesn't prescribe HDB. He only scripts up to 80mg, which is useless for most people.
            You are correct, he does only go up to 80 mg.
            Honour Thyself

            Comment


              #21
              Baclofen can be dangerous

              Ifullovelife are you the imbecile who thought Baclofen made your genitals grow? If not sorry for mixing you up with that prat.

              Of course I wasn't abusing Baclofen. Baclofen has no abuse potential. Even better, you can take as much Xanax as you want and not worry about getting hooked on that either. I think it even regrows hair so you can throw out your propecia.

              Seriously, your arrogant tone is ridiculous. This is a story of a suicide during Baclofen withdrawal. I am not a kid. I am a many years of post-secondary education including pharmacology who has been struggling with suicidal ideation during Baclofen withdrawal.

              Thank you for attempting to discredit me, but mine is a true story and I have no ulterior motive. I think high dose Baclofen therapy is not a good idea for alcoholics to practice on their own. Plain and simple.

              Comment


                #22
                Baclofen can be dangerous

                Xadrian, thanks so much for sharing your thoughts on Anna and her struggle. After reading more about her online and her posts here on MWO, I just feel so sad about what happened. Sharing the similar struggles (not to mention the same birth year) makes me feel connected in a sad way to her.

                Anyway I haven't seen this posted on MWO, but it appears that Anna's parents have teamed with Mind in the UK, I believe they're taking donations to help others with mental health/addiction struggles. I thought twice about posting this (because of anonymity) but it's public, in the news and online, and for a good cause. And in memory of a lovely person.

                PS. I should note that on this page, her parents attribute the mismanagement of her withdrawal as the cause of her death, but they also state baclofen as an inapropriate drug. Many here on MWO will clearly not feel that baclofen is inappropriate for their own treatment. I am one of them- baclofen has been a godsend for me, and I know others feel the same, but I respect that still others feel differently.

                Anyway here is the link if anyone wants to post well wishes or donate.

                Anna Sargent

                Comment


                  #23
                  Baclofen can be dangerous

                  magnolia09;1535144 wrote: bump
                  My money's on baclofan.....


                  Edit: (for last place).

                  Edit 2:going, going..........gone.
                  TerryK celebrates 6 years of sobriety and indifference to alcohol thanks to baclofen

                  Comment


                    #24
                    Baclofen can be dangerous

                    emily;1531074 wrote: You are correct, he does only go up to 80 mg.
                    It is a very sad story. Thanks Xdrian for sharing your story of Anna.

                    My wife also went into hospital to get treatment during her use of baclofen. I have advocated for a long time that this treatment should be supervised by a doctor. We saw Dr. Chick a few years ago and he prescribed up to 100 mg but later told me he did prescribe over that leve.

                    My wife had severe problems with the treatment she was getting back in 2010 and it didn't just clear up with baclofen. Her GP refused to go over 100 mg, no one knew the correct dosage or, more importantly, how to take it throughout the day, so we found a doctor in a local hospital who was working on liver patients and he took over prescribing at very high doses which sobered my wife up. She sobered up so well that she suffered DTs. The hospital this doctor was working in refused my wife admission so all this was done at home and it was horrifying. I had complaints about her behaviour from neighbours, the police came, etc, and I then tried to get her back into hospital where she went into delirium again. She had come off the baclofen very rapidly because while I was shoving baclofen down her throat, she wasn't drinking but she was so "out of it", that when she did stop drinking, she just let the drugs go, so she came off drink and baclofen simultaneously. Added to that, we had a huge amount of very bad stress from work, family, kid's school ie., bullying, daughter introducing fiance...

                    Anyway, she got into a heap of trouble over it all which took a couple of years to sort out. Depression does not cover it. When you take a highly charged long term alcoholic and put them through a drug treatment like baclofen, you are going to get into serious problems if you don't get it right and the present state of affairs is not good.

                    The news article is hugely inaccurate. If Anna had stayed on Baclofen I believe she would have been ok. The problem is that baclofen does not take away the need to deal with other issues in life. In fact, it makes you have to confront them, but it does allow you to think about them without getting even more anxious.

                    Going off baclofen quickly as happened to my wife, also at a hospital, and with no proper psychiatric backup, can be disasterous, but that doesn't mean it doesn't work. In fact, taking her off it, in my opinion, is what pushed her to the edge. Baclofen is a very serious medication and any doctor who tried to take her off it should be investigated and disciplined for gross negligence causing death.

                    My wife carried on with baclofen and is now not only completely recovered from alcoholism but able to withstand huge stresses and look forward to a happy life. We are packing our home and the movers are coming tomorrow and we are off to the sunny Mediterranean to start a new life, none of which would have been possible a few years ago. She has lost about 60 lbs, has loads of energy and a real desire to have a good life without alcohol, and will tell anyone that this is all down to baclofen.
                    BACLOFENISTA

                    baclofenuk.com

                    http://www.theendofmyaddiction.org





                    Olivier Ameisen

                    In addiction, suppression of symptoms should suppress the disease altogether since addiction is, as he observed, a "symptom-driven disease". Of all "anticraving medications used in animals, only one - baclofen - has the unique property of suppressing the motivation to consume cocaine, heroin, alcohol, nicotine and d-amphetamine"

                    Comment


                      #25
                      Baclofen can be dangerous

                      Otter, your dedication to your wife, your diligence in advocating, and educating; your willingness to surrender so much, and still remain here, sharing your powerful story, is humbling, helpful and hopeful.
                      "Wherever you are is the entry point." --Kabir

                      Comment


                        #26
                        Baclofen can be dangerous

                        I feel so sorry for Anna and her family. At the same time I am very upset by the reporting of this. I have been writing to the UK agencies responsible for educating doctors about drugs because I have been so concerned about people self prescribing and using it with no medical advice, but, also, because there is no proper medical backup at hospitals in case something goes wrong.

                        In the UK we have free medical advice and hospital treatment so why was she going to the Priory Group who don't use baclofen in their treatment regime and don't know anything about it? They are 12 steppers and always try just to detox the patient before they begin "treatment".

                        We have a national sports hero called Paul Gasgoigne who nearly died from this kind of approach a while ago Paul Gascoigne: I thought I was going to die in rehabilitation | England Football Team News, Fixtures, Results | Sky Sports That is what mainstream rehab puts people through...so what has baclofen got to do with this and why is it reported as being addictive when it isn't???

                        I am writing to the Coroner's office to see if I can get some more information about this because it just isn't right that the UK government has known about baclofen treatment for alcoholism and just sits back and allows this sort of thing to happen.
                        BACLOFENISTA

                        baclofenuk.com

                        http://www.theendofmyaddiction.org





                        Olivier Ameisen

                        In addiction, suppression of symptoms should suppress the disease altogether since addiction is, as he observed, a "symptom-driven disease". Of all "anticraving medications used in animals, only one - baclofen - has the unique property of suppressing the motivation to consume cocaine, heroin, alcohol, nicotine and d-amphetamine"

                        Comment

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