Baclofen years later

[bleep]

Baclofen years later

JD, I think there is more to it than that. What you have said has some truth in it, in that creating a small splinter group is just an ineffective use of resources, but I think it comes more from a feeling that baclofen is actually an answer, and deserves a place of its own. A resource that people can go directly to, and not have to stumble upon, by chance, nestled away in a sub-forum.

It's about focus, really.

MWO has a very warm place in my heart, and although I fade in and out as time goes by, I can see myself being here for years to come.

There is more, but I have to hit the road for now.

And Rango is cool.

[Colin]

Baclofen years later

Otter;1531578 wrote: have realized that the entire English speaking world has only this forum where baclofen is drug number four on a sub thread on a holistic medicine site selling L-glutamine, ...
Holier than thou? We don't get any sponsor income because we don't have a sponsor.

I would be seriously surprised if "Roberta Jewell" has made anything more than a nominal net profit.

Otter;1531578 wrote:
... Go to the new forum and start kicking some serious arse.

Leave the wimps and cry-babies. We put fireworks in our toy guns. Watch the world tremble!

[Lo0p]

Baclofen years later

I (as always) disagree with a lot of verbiage Otter chooses to use. "Naysayers" being a glaring one. Naysayers who are telling the truth are a precious part of the process and our history. Naysayers are not trolls. Trolls have the added attributes of extremes of negative attitude and lying (about who they are and what they say). Truth, be it good bad or ugly is still truth.

I've known Otter well for years now and know that he considers himself as lucky as everyone else here, not "holier than though" to have happened to have stumbled across this forum.

His "fireworks loaded in toy guns" consist of countless letters lobbying every level of his government that he can possibly reach along with individual practitioners. His side projects (that I'm aware of are setting up a forum in the UK and a blog in the US) . Stating only the above off the top of my head I know I am selling him short. His language that (I think) you likely misconstrued stems from the fact that he is a lawyer. A lawyer who could have been making considerable sums of money these past couple/few years instead of following his heart and turning an invaluable amount of energy towards helping people via his area of expertise.

All of this to the point that he has caused such a ruckus in his local conservative community he's moving to a different country entirely.

You're talking about a guy who's strapped himself to the proverbial "railroad tracks" for you.

[Lo0p]

Baclofen years later

Otter, March 27th 2010:

Otter;829074 wrote: I am proposing a call to arms to bring Baclofen treatment to the attention of doctors, their professional bodies, insurers and legislators.

Ameisen's treatment model has been hailed by Nobel laureate for Medicine Jean Dausset: "Ameisen has discovered the cure for addiction". His book has received the official endorsement of the Oxford Journal of Alcohol and Alcoholism, which represents the United Kingdom's National Council on Alcoholism, and by its chief-editor, Dr. Jonathan Chick who has taken the unusual step to support Ameisen's findings in the media. Jerome B. Posner, Chair of Neuro-oncology, George Cotzias director of the laboratory, Memorial Sloan-Kettering Cancer Center wrote in January 2009:
"One wonders if high-dose baclofen will apparently become the treatment of choice without ever undergoing a controlled trial, simply because more and more alcoholics will be treated and the effectiveness will spread by word of mouth. If it works as well as you indicate that it does, it shouldn't need controlled trials. Even if a controlled trial were to show no overall benefit, it is clear that at least some (maybe all?) patient's do respond."

Now is the time, if you care about yourself, your family, your friends and the rest of us unfortunates whose lives are a living hell because the medical profession know little about the treatment of alcoholism, and could not care less, to do something.

In law there used to be a doctrine called "local practice" whereby a doctor who knew nothing about a new treatment could defend his ignorance by saying he acted in accordance with local practice. Well, the days of disseminating information by pony express have gone. There is no excuse for any doctor to ignore the internet and the ever-increasing evidence, supported by some of the most prominent physicians, that baclofen is likely to be an extremely effective treatment for alcohol addition even if it may not be called a "cure" for a few years yet.

Every doctor should fear that in the not too distant future he could face law suits from patients who have not been given the opportunity of being prescribed with Baclofen. Every lawyer who has a client who has an addiction may have a law suit against the client's doctor and the insurers of medical professionals could face an Tsunami of litigation if they do not take this seriously. It is time that they took notice.

Tell your friends about this medication. Tell your doctor. Send an email to the professional body for doctors in your area asking why doctors are not prescribing Baclofen for alcoholism. Tell them it works and let them know that an increasing number of people afflicted by this horrific illness are healing themselves with little or no help from the medical profession. Give them something to worry about.

If the only way Baclofen can become a widely used treatment for alcoholism is through word of mouth then start spreading the word. I have written to the General Medical Council in London, England, the American Medical Association and told two local doctors about Baclofen. I am telling everyone I know about Baclofen.

Hundreds of millions of people around the world are affected by this illness. Stop being a victim of this illness and a medical profession which has little knowledge of this effective treatment for alcoholism and cares even less. Help lift the stigma that blights the lives of alcoholics and their families which labels alcoholism as a moral attitude rather than the illness it is.

It only takes a few emails. It costs nothing and it could change the lives of millions.

He is just one voice, pleading for help. Our voices, your voice, from anyone who understands.

Now, please take note JDizzle (and anyone), that this was written more than 3 years ago. Does it not sound eerily familiar to the same message and ideological goal present among those of us that continue to scream today?

Those of us who've been around for years feel like we are playing triage nurses in a hospital with a revolving door, treating the same condition over and over, located at the at the bottom of a hill with a blood spattered concrete wall right next to the front door of the ER. It's awesome to see the new generations filling this role and perpetuating the process and saving real people's lives. But there is more that needs to be done.

We just want to relocate the hospital to the top of the hill. And have the exit be a simple U-Turn in the opposite direction.

Unfortunately we are finding ourselves in a Pinto that can't even climb the hill to scope out the new site for the hospital, the driver of said vehicle is invisible and also disinterested. We want a Ferrari, a school bus, an airlift a tank and whatever else it takes.

[Lo0p]

Baclofen years later

I apologize colin, for coming off harsh. I've got screaming kids running around and had just woken up. Please bear with me. I'd like to edit the very last word in my response to you from "you" to "all of us". :sorry:

[spiritwolf333]

Baclofen years later

BACLOFEN FOR ALCOHOLISM

BACLOFENFORALCOHOLISM.COM

1. This site does not compete with my way out. It's focused on Baclofen. The creators of this site know what is important relative to alcoholism and baclofen. As others have said, you don't have to stumble upon baclofen in an embedded thread. I only recall too well a few months ago trying to gather information about baclofen. I was half shot out from alcohol most of the time and lack of direct informative information only made matters worse. This new site might help an alcoholic desperate for a solution find a revolutionary answer that much quicker. After all, we alkies, for the most part, seem to be willing to step outside of the box more often than not.

2. ACESS TO INFORMATION is what has freed me from the firewater beast. I have been down this recovery road for many years. I know for a FACT that baclofen works for me. Word needs to get out anyway that it can. After seeing the Diane Sawyer interview, I knew there had to be some legitimacy to Baclofen and I was right. But the lack of access to information was and is unreal. This is changing quickly. Let a few more drunks like myself get sober and have a life and things will take on an even more rapid pace. (Remember, alcoholics do have a propensity to allow their egos to go overboard-lol)

3. To the seniors and MWO: I will always be grateful that you folks stayed the race to bring baclofen forward. Your motivation for doing so then and now is irrelevant. Profit, passion, compassion, etc -DOES NOT MATTER!. PERIOD...END OF STORY. If someone is making money from baclofen-great, you are not selling snake oil-you are passing along a great answer. The new site does not appear to be trying to sell anything.

...

[ifulovelife2]

Baclofen years later

I wouldn't worry too much about Baclofen being lost in the mass of MWO information. When I log onto MWO I check how many viewers the different sections have. 2 minutes ago was a typical example: General Discussion, Just Starting Out, Holistic, all the rest had viewers in single figures. Meds had 82. A few of that 82 will be looking into Antabuse, Topamax and Naltrexone but the vast majority are of course reading about Baclofen.

MWO pretty much equals Baclofen these days. The truth will out. Baclofen works. Simple as that.

[Colin]

Baclofen years later

I agree completely with the new site's aims and with otter's personal crusade but that will not stop me from objecting to his belittling commercial description of MWO as "a holistic medicine site selling L-glutamine".

"We put fireworks in our toy guns." Otter puts more in but I doubt if I will when I join the new site.

Why can't I come into your site as Colin? I created the entry for Colin but find I am just a visitor.

[Colin]

Baclofen years later

It's been like this for about two months IULL. Right now it's Meds 50, General Discusion 12 and the rest nowhere. Before this big increase Meds rarely had more readers than General Discussion. If a few lurkers could tell us what brought them?

[Lo0p]

Baclofen years later

Otter is a damn prolific fellow. So prolific that when he says things I disagree with (which definitely happens) I'd be a fool to point them out because I'd be wasting my own capacity to be quite prolific. And he's got too much good stuff to say for me to be bothered by the other stuff.

You're in there. You joined June 3rd with an email address from The Netherlands. Unless there's another Colin from your area that beat you to it.

When you sign in correctly and post you should probably have the title Junior Member or something like that. If you're having password problems follow the instructions. If you need further help than that hit me up with the email addy that you think you registered with and I'll hook it up.

[JDizzle]

Baclofen years later

Well I praise otter for choosing principal over money. There are 3 people in the world that would do that... I'm not one of them. Unfortunately people are finding baclofen through google. People hear about and start looking for info. The searches do not put them onto mywayout.org, it puts them onto https://www.mywayout.org/community/f2...r-3-78152.html. There is no searchable data about baclofen on the main forum page. I'm not sure i think it really matters what the main topic of the forum is... People are landing on threads. A little more background on me.... My degree is in computer science but I am currently an outsourced CFO for 6 medium sized companies, 3 of which are large Internet retailers. The days of putting up a website and having it be successful ended in 1997. I have seen so many of our competitors in my business world try and put up sites to compete with 3 of the companies I deal with. They have dumped a ton of capital into Internet marketing and just cant get off the ground. If u really want traffic, u have to pay google about 50k a month, so u better be selling something. Organic results are going to be difficult because it is widely thought that google gives priority to sites that have been established for a long time. Best of luck to u all for sure. I think I get what u r trying to do and I think the motives seem to be sound. I just think u r trying to solve a problem that doesn't really exist. Grassroots doesn't change laws... As much as I wish they did. Money does. The anonymous donor that put 750k (I think that was the number) into funding double blind clinical trials is a huge deal. Once those results come out, it will be impossible for the FDA to not approve it. It will be ALL OVER the news. It will be a wonderful day when we can stop being doctors and be able to receive proper care.

[Lo0p]

Baclofen years later

My best guess is that you haven't tried to login since you signed up. Your last activity was also June 3rd. The "remember me" button only lasts a certain amount of days. The link to login is in the top right corner.

Otter's crusades I will always support. But we have some major plans, currently in their infancy that are focused on the endgame. This will take time. Some projects we can't even start for some time. I am not a patient person by nature. Usually when I want things to happen I make them happen. This is bigger than me and it's bigger than all of us. This is about all of those out there now who don't even know there are people like us who were lucky enough to find the other side. There is a chasm between them and us so wide that when we scream they can't hear us.

It's time to start building a bridge.

This forum is just laying the groundwork for things to come.

[Lo0p]

Baclofen years later

Google "baclofen for alcoholism"

Our hosting provider is one of us. And they pull dirty SEO tricks. For the sake of their anonymity I'm not going to go into the size of their business. We will get there it'll take a little time.
At the top of any search concerning baclofen, alcohol or addiction, the results have no $$$ involved, obviously. Save the 3 sponsored links.

In spite of that, to qualify, I said "no money involved except for outlay, and no one need concern themselves with that".

A donation button isn't out of the question. But it's not on our radar yet.

edit: *baclofen and alcohol or addiction.
I'm sure with alcohol or addiction you'll get some rehab companies in there.

[JDizzle]

Baclofen years later

The dirty SEO trick is that u googled ur URL

[Lo0p]

Baclofen years later

JDizzle;1532236 wrote: It will be ALL OVER the news. It will be a wonderful day when we can stop being doctors and be able to receive proper care.

I'll continue to be vague about this so as not to make hollow promises until it hopefully comes to fruition. But as I said before, we may have some real connections and resources to further this process along faster than money that doesn't exist, faster than a grassroots effort and definitely faster than nothing at all.