Hi,
Some of you may have heard that the French medical safety agency, ANSM, has told doctors and pharmacies throughout France to limit the use of baclofen to only 80mg per day. This includes people who have been on much higher doses and this puts their health, and their lives at risk.
This is now being taken to court. A French couple are taking this to court and will be arguing that this decision violates their right to life, guaranteed under the European Charter of Human Rights. The medical safety agency actually wrote to all doctors telling them to gradually reduce dosages, even to patients who were happy with their medication at high doses, and had recovered from alcoholism as a result. It's an incredible, awful development and is probably motivated by money. There are a number of pharma companies who want to get a marketing authority to sell baclofen but their trials only reflected use of baclofen up to 80mg/day and they have, I guess, persuaded members of the agency to ensure that the use of generic baclofen at high doses be stopped.
I would ask that anyone who cares about this writes a testimonial about their use of high doses of baclofen and how it has helped you to deal with your alcoholism to the following internet site which is collecting testimonials: It would be very helpful to have anyone who can spare the time, write in and set out how they have been helped by baclofen to this site:*
Nous apporter vos temoignages – COLLECTIF BACLOHELP
They are looking for international contribution to show that high dose baclofen has been used around the world. *
This is a very sad situation, that in the home of Olivier Ameisen, there are cynical doctors who would deny patients already using baclofen at high doses, access to their medication. *This could result in their deaths through alcoholism. *The decision to limit use to 80 mg a day means that the government won't pay for prescriptions above that amount so many people won't be able to afford the treatment. *It will also mean that doctors will not want to go beyond that level because they are being scared off from doing so by what is essentially false evidence about the risks of using baclofen at higher doses.*
Please forward the link to any member or former member or anyone you know who is taking baclofen and cares about this treatment.
Some of you may have heard that the French medical safety agency, ANSM, has told doctors and pharmacies throughout France to limit the use of baclofen to only 80mg per day. This includes people who have been on much higher doses and this puts their health, and their lives at risk.
This is now being taken to court. A French couple are taking this to court and will be arguing that this decision violates their right to life, guaranteed under the European Charter of Human Rights. The medical safety agency actually wrote to all doctors telling them to gradually reduce dosages, even to patients who were happy with their medication at high doses, and had recovered from alcoholism as a result. It's an incredible, awful development and is probably motivated by money. There are a number of pharma companies who want to get a marketing authority to sell baclofen but their trials only reflected use of baclofen up to 80mg/day and they have, I guess, persuaded members of the agency to ensure that the use of generic baclofen at high doses be stopped.
I would ask that anyone who cares about this writes a testimonial about their use of high doses of baclofen and how it has helped you to deal with your alcoholism to the following internet site which is collecting testimonials: It would be very helpful to have anyone who can spare the time, write in and set out how they have been helped by baclofen to this site:*
Nous apporter vos temoignages – COLLECTIF BACLOHELP
They are looking for international contribution to show that high dose baclofen has been used around the world. *
This is a very sad situation, that in the home of Olivier Ameisen, there are cynical doctors who would deny patients already using baclofen at high doses, access to their medication. *This could result in their deaths through alcoholism. *The decision to limit use to 80 mg a day means that the government won't pay for prescriptions above that amount so many people won't be able to afford the treatment. *It will also mean that doctors will not want to go beyond that level because they are being scared off from doing so by what is essentially false evidence about the risks of using baclofen at higher doses.*
Please forward the link to any member or former member or anyone you know who is taking baclofen and cares about this treatment.