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    #16
    Re: Need to make contact with others using baclofen

    [MENTION=24679]Mulburry[/MENTION] I have enjoyed reading your posts too. It seems we are the only two people posting, I check back regularly to see if anyone has commented on my thread and consistently see nothing. Your posts are the only deviation from mine and always have a look.

    I think Gabapentin works on a different GABA receptor, I do recall people doing it years ago on here. Traditional approaches such as 12 step fellowships have never been a good fit for me and many I suspect. I used to be a part of them and was a willing advocate until my best friend killed himself at 8 years sober. I had been close to 3 other suicides in the 6 months prior, it caused me to start asking questions about the program and I had found and read Dr. Ameisen's book around the same time beginning my first journey on Baclofen. I found it interesting you felt stoned for lack of a better term on Gabapentin.

    Another funny little story.

    I ran into an AA member a few weeks ago, who I am still friendly with. There are a few I still chat with but many would not give me the time of day these days. When I turned my back on the fellowship a campaign of ostracising me took place, people were told to stay away from me as I would drag them back into active alcoholism, I only know this as certain people I was close to at the time were telling me. Anyway I came across this guy and he had a new girlfriend who I can only assume was a newcomer to the fellowship, he has now been sober for many years and is heavily indoctrinated. He says with a hyperbolic arrogance found amongst older sober members "there is only one way to stay sober." I suspect he said this for several reasons, one being to impress his new girlfriend. AA openly mocks medical approaches where I live. She looked proud at her choice in men and her journey into what she thought was the only way to remain sober. My response was to remind him AA was not the only way, there were other ways which AA would never promote as it does not fit their narrative. He knew exactly what I meant yet the arrogance of the older sober members is a fragile house of cards that requires strict adherence to cultural norms, especially when beginning to indoctrinate new members. They must be seen as something to aspire to, they love telling people how long they have been sober, it is a badge of honor worn very proudly yet can be sinister in its intent. He knows Baclofen has worked for me before and couldn't get out of my immediate vicinity quick enough.

    I'm sure when I stopped taking Baclofen a few years ago, they would have relished that I was back drinking again, this is how sick a lot of older sober members still are. What they don't know is I made a conscious decision to stop taking Baclofen as I had been through some terrible changes in my life and had decided in the midst of a deep depression to try to drink myself to death, I know it sounds silly but I was determined to follow through. Alas drinking oneself to death is much harder than one would think. I ran into another old friend from AA after I had been in hospital recently in a supermarket, she asked about it and before I could begin to explain she implied it must have something to do with my alcohol beaten liver. It was not, and I couldn't help myself. I smiled and told her I thought it was amusing an older sober member of AA would immediately assume my health issues were directly related to alcoholism, she is a good woman but wow did she backpedal and try to get away from me as fast as she could. It is true I could have health issues from a hard life of drinking, I have certainly done a lot of it. The truth though is my kidneys, liver and pancreas are all functioning normally, it is a bit of a miracle but it is what it is. Once again the default arrogance of the older sober members bubbles through to reveal itself, even whilst proclaiming gratitude, serenity and an open mind. I know they believe their lives depend on it but this is just another aspect of the indoctrination process of 12 step fellowships. The similarities to a cult are very interesting, even if they have very well worn reasonings as to why they are not a cult.

    I am now on 290mg a day and have only drank 7 beers over the last couple of nights with most of the 7th being tipped down the sink, I suspect I will be going higher but with the changes I am seeing it won't be too much longer before I can say I have hit the switch and start thinking about finding a maintenance dose.

    Cheers Steve.

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      #17
      Re: Need to make contact with others using baclofen

      I think Gabapentin works on a different GABA receptor, I do recall people doing it years ago on here
      Ya it works directly on calcium channels IIRC. The thing though is, from what I've read, it also has a fairly high dependence profile and can even cause withdrawal seizures, so it's something I probably would have only wanted to use for a few days or a week anyways. I have a really sensitive brain so I'm very wary of staying on anything too long (even trazodone etc.).

      and had decided in the midst of a deep depression to try to drink myself to death, I know it sounds silly but I was determined to follow through.
      I can relate to this, whenever medical people have (cautiously) brought up the issue of suicide I always tell them: while sure I've thought about it, I'd be much more likely to do it slowly by drinking myself to death rather than jumping off a bridge. Unfortunately my liver especially (luckily not yet irreversible) and kidneys have taken some damage; and I do have the feeling if I would continue like this into my 40's my health would probably seriously start to decline.

      Traditional approaches such as 12 step fellowships have never been a good fit for me and many I suspect.
      Ya, I mean if it works for some people great for them, but I wouldn't touch AA with a 10 foot pole. What you wrote pretty much confirms what I've heard about it. Aside from the cultish aspects (thumbs down) the idea of sitting in a room with a bunch of strangers in person and having to talk (I have pretty bad social anxiety) would probably make me want to drink more than anything. They actually have a some more modern alternative to AA group type programs here but I just prefer to get support from friends and family (which has been great) and online (from great peeps like all of you!).
      Last edited by Mulburry; September 30, 2021, 12:16 PM.

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        #18
        Re: Need to make contact with others using baclofen

        As of today I am on 300mg a day, I grabbed my first beer about 1630 yesterday afternoon and realised after I had cracked it day light savings had started here today. I was a little disappointed to realise I had actually cracked a beer earlier than I had in the last couple of months. If it hadn't have become day light savings time it would have been 1530 in the afternoon. It won't get me today.

        [MENTION=24679]Mulburry[/MENTION] I don't know much about Gabapentin, but think I recall reading it works on the GABA A receptor, don't quote me on that and I know it has helped other people. Baclofen engenders a dependence too, if I was to lose my supply right now I would go into some pretty nasty withdrawals from what I have read about it. It is part of the reason I spoke with the pharmacist to let him know I was not getting high or abusing Baclofen for fun.

        I used to work with people with Acquired Brain Injuries, ABI's. One of our clients had a Baclofen pump and his supply was replenished every 3 months or so. His ABI was global, a hypoxic injury from an asthma attack. We had some challenging situations with management and new inexperienced staff which caused for his supply to run out, it came to light once he got to see his doctor. I was close to this mans family and was a key worker for him, I was terribly alarmed to learn through negligence of management and documentation of green staff this poor man was left to be in Baclofen withdrawal for days. He was non verbal and couldn't tell us what he was feeling, I have not thought about that in nearly 10 years and feel a little sad as I reflect on it now.
        Last edited by Stevo; October 3, 2021, 08:33 PM.

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          #19
          Re: Need to make contact with others using baclofen

          I was terribly alarmed to learn through negligence of management and documentation of green staff this poor man was left to be in Baclofen withdrawal for days. He was non verbal and couldn't tell us what he was feeling, I have not thought about that in nearly 10 years and feel a little sad as I reflect on it now.
          Yikes, that sounds horrible, poor guy.

          I have a bit of a fear (irrational I'm sure) of something like that happening, being dependent on some medication and then not being able to get it anymore for some reason (not to mention the idea of having to go through a whole nother withdrawal process at some point even if regimented tappered).
          Last edited by Mulburry; October 7, 2021, 01:18 AM.

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            #20
            Re: Need to make contact with others using baclofen

            [MENTION=24679]Mulburry[/MENTION] I hold those same fears, I don't think they are irrational.

            I haven't had anything to say for a week or so, but today was interesting to say the least.

            Today I saw my GP to get a new prescription for bac. He has come to the conclusion any neurological issues I am having since the episode/event which is still undiagnosed is the outcome of me taking bac. He has withdrawn his support for me to do this and has given me one prescription with 5 repeats and made it clear I won't be getting another one.

            I am on 300mg a day and have to begin titrating down immediately. He said a few things leaving me to believe he didn't like getting the phone call from the pharmacist and wanting to retire on his own terms. He couldn't let me keep going and have something terrible happen to me because he is facilitating it, which I completely understand and respect.

            This drug has been transformative in my life, and I was hoping to switch before any of these issues arose. It seems that may not happen now.

            I don't want to stop. I am so close to seeing the process to fruition for a second time. That being said, I am on a much higher dose than I was last time and I have become a liability. My desires should not jeopardise the lives of others, even though it may be important to me.

            Does anyone know of a reliable online pharmacy? I have seen some recent posts saying the one I used to know of is having issues.

            I feel like I was approaching the light at the end of a very long tunnel and have been pulled back to the start of the tunnel again.
            Last edited by Stevo; October 11, 2021, 05:48 PM.

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              #21
              Re: Need to make contact with others using baclofen

              [MENTION=22203]Stevo[/MENTION], here are the online pharmacies that I have had the most success with. I know that you are in Australia so YMMV.

              - Goldpharma - my longtime favorite, ships out of Germany. medications from goldpharma.com

              - River Pharmacy - based out of Canada, but ships from India. River Pharmacy

              - All Day Chemist - based/ships out of India - Prescription Medicines From Online Pharmacy | AllDayChemist

              - Inhouse Pharmacy - based out of Vanuatu - haven't heard or read much about these guys lately but they used to be good for people on here Inhouse Pharmacy | Prescription Medications Shipped Worldwide

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                #22
                Re: Need to make contact with others using baclofen

                [MENTION=14524]_serenity_[/MENTION] Thank you, you may have just pulled me back towards the light.

                I know most on this journey don't have the luxury of a supportive doctor and my story may be seen as easy. I cannot describe enough how gutted I felt yesterday when my doctor pulled the pin.

                I appreciate this so much.

                I have been on a roller coaster of emotions and thoughts through the day today. I was ruing the prospect of spending my life white knuckling and grappling with AUD, it is why I am such a fan of bac. The concept of indifference appeals to me much more than struggling through the rest of my life either drunk or battling to stay sober.
                Last edited by Stevo; October 12, 2021, 03:12 AM.

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                  #23
                  Re: Need to make contact with others using baclofen

                  Hope it works out for you.

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                    #24
                    Re: Need to make contact with others using baclofen

                    Originally posted by Mulburry View Post
                    Hope it works out for you.
                    At this stage, I am not sure what I am going to do. The above option is there to be explored, yet at the moment I am more worried about withdrawal. I can't possibly titrate down safely on what I have access to [MENTION=24679]Mulburry[/MENTION]. I have already tried to taper down faster than my body wants and it wasn't much fun. The last couple of days have been interesting, I went back up this morning.

                    I am feeling normal right now. I will have to find another doctor who is empathic or order online.

                    Comment


                      #25
                      Re: Need to make contact with others using baclofen

                      I would do that fast, [MENTION=22203]Stevo[/MENTION] - you will run out in no time and 300 mgs/day is not a dose you want to withdraw from.

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                        #26
                        Re: Need to make contact with others using baclofen

                        Quick update and check in Stevo,
                        I am back up to 180mg a day, I am still drinking but strangely not as much as I thought I would be as I began titrating down. I seem to have lost the drive to drink obscene amounts of beer like I was before starting baclofen again.
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                        Last edited by Deepak05; January 3, 2022, 01:16 AM.

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                          #27
                          Re: Need to make contact with others using baclofen

                          I am glad to hear that [MENTION=24709]Deepak05[/MENTION], keep going if you can. I love that you updated on my thread, please post on here whenever you like.

                          Quick update from me,

                          As of yesterday I am on 305 mg a day, it is nice to report I have a supply again, although it is more expensive and doesn't involve my doctor. My AL consumption is getting less as I go higher as expected. Although I would not say I have switched, I am definitely getting to a point each evening where I just don't want to drink any more.

                          I begin drinking later in the day and finish earlier of a night. Baclofen is doing exactly as it should. My idea of what it is to switch has changed, I now think it is a process which may have started far before I got into the high 200's and now the 300's. It would be good if there were as many people on here as years ago to talk about this with, but it is not this way any more.

                          It doesn't really matter, I am very happy to have a new supply and to be able to keep titrating up to indifference.

                          Cheers Steve.

                          Edit- I have also noticed people can't like or thank for my posts anymore, does anyone know why this may be?
                          Last edited by Stevo; January 3, 2022, 12:56 AM.

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                            #28
                            Re: Need to make contact with others using baclofen

                            Hey there - I have been using baclofen for years now with great success - 100-140mg does it for me, and I take in the late afternoon/evening, which is when I need it. For a period of time, I alternated between baclofen and gabapentin, which seem to operate in a very similar way. One thing that I learned pretty early on is that I cannot take either if I am going to drink 4 or more - it has gotten pretty ugly with losing balance and reduced motor control. Wish it was more widely understood - baclofentreatment.com is a fantastic resource. Good luck!

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                              #29
                              Re: Need to make contact with others using baclofen

                              Thanks for that input [MENTION=24712]Chicago[/MENTION]

                              I too wish it was still on the radar and more widely understood. Your approach interests me, it is a little different to what I have become accustomed to.

                              So you take 100-140mg in the afternoon to ward off cravings through the night, and this has helped you for years?

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                                #30
                                Re: Need to make contact with others using baclofen

                                [MENTION=22203]Stevo[/MENTION] I can relate to your experience of having an earlier dose not work for indifference anymore after an interval without using it. My first success with baclofen came over ten years ago at 175 mgs. My latest treatment (self prescribed) started about 2 years ago and I wasn't able to attain the same level of indifference until I had reached 340 mgs. I've since reduced to 130 mgs.
                                -Ian

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